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Pete Caluori replied to the topic Is anyone getting the 4th shot/booster? in the forum Coronavirus (COVID-19) and ALS 2 months, 2 weeks ago
Hi Folks, I received my 5th booster (Moderna) a few weeks ago. I’ve always had breathing issues my entire life and am deathly afraid of getting Covid, so I’ll take every precaution against it! This latest booster was for the omicron variants. So far no adverse reactions other than a slightly sore arm the day after.
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Pete Caluori replied to the topic Has ALS changed your perception of aging? in the forum Living With ALS 3 months, 3 weeks ago
Dagmar, thanks for mentioning toxins! My particular toxin was CO2. When my wife took me to the doctor, which I have no memory of, the doctor told her to take me to the hospital. It was there after testing my blood they found my CO2 level at close to 200! I now rely on a BiPAP machine to keep the CO2 levels down. I wear the BiPAP 20+ hour…[Read more]
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Pete Caluori replied to the topic Tired???? in the forum Diagnosis Information and General Questions 3 months, 4 weeks ago
Thanks Dagmar I’ll try it!!
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Pete Caluori replied to the topic Declining Fast in the forum Living With ALS 3 months, 4 weeks ago
Good Luck Eric! I’m in the same position, I walked into the hospital at the end of march and was taken home 2 weeks later in a private ambulance and could not walk. Luckily with some help from a physical therapist I can now walk (actually, hobble around) but I tire easily and use a cane because I’m afraid of falling. I was placed on Maine’s Ho…[Read more]
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Pete Caluori replied to the topic Has ALS changed your perception of aging? in the forum Living With ALS 4 months ago
I was diagnosed at 63, but what I thought were signs of old age was probably undiagnosed ALS. I spent 14 days in the hospital while being diagnosed and they gave me about 1 month to live; needles to say my wife was devastated. I look at each new day with hope and a new beginning. I was diagnosed in March 2022! when it comes to ALS most doc…[Read more]
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Pete Caluori replied to the topic Tired???? in the forum Diagnosis Information and General Questions 4 months ago
Though recently diagnosed with ALS, as I think back I’ve probably exhibited signs of ALS for at least 3-4 years. Now, I feel tired after walking with a cane after going a block or two. I recover after sitting down for 15 to 20 minutes, but I can’t sit on a low seat, because then I can’t get up by myself. I keep a positive attitude though and re…[Read more]
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Pete Caluori replied to the topic Dressing up for hospitals or appointments in the forum Diagnosis Information and General Questions 4 months, 3 weeks ago
I wear what makes me comfortable!
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Pete Caluori replied to the topic Swallowing your pride and using a walker/rollator in the forum Mobility Aides, Assistive Technology and Medical Equipment 4 months, 3 weeks ago
Swallow your pride and be glad you can still walk!
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Pete Caluori replied to the topic Social Death in the forum Living With ALS 5 months ago
Amanda, please don’t let someone who may have been having a bad day spoil your good nature and manners. If you held a door for me I would profusely thank you for your kindness!
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Pete Caluori replied to the topic A brand-new sub-forum: Let's discuss mobility, technology and medical equipment in the forum Mobility Aides, Assistive Technology and Medical Equipment 5 months ago
Hi Kris, check if your state has a hospice or home care service that you can use. I was placed on the hospice service in my state and they provided a Hoyer lift for free, but I have never used it. I’m now in Home Care, because the Hospice folks wanted me to croak in 6 months or less!
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Pete Caluori replied to the topic I’m so Frustrated!! What about You? in the forum Diagnosis Information and General Questions 5 months, 1 week ago
In addition to what everyone else has said, this really needs to be emphasized to allergists. For years I was seeing an allergist and taking all sorts of medicine for it with little to no result. After being diagnosed with ALS, I let my allergist know and he said thinking out loud, “no wonder your lungs sounded clear”
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Pete Caluori replied to the topic Summer COVID Updates – – How are YOU doing? in the forum Coronavirus (COVID-19) and ALS 6 months, 1 week ago
I’m sorry to hear that some of you had COVID. Fortunately my wife and I have steered clear of this horrible pandemic. Everywhere we go we wear a mask even to the dismay of others, but with that said we don’t go out much and when we do we take all precautions. We especially avoid crowds and avoid social contact with those we don’t know. We are b…[Read more]
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Pete Caluori became a registered member 6 months, 1 week ago
Hello Pete,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Hi Pete,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]