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Robert Rigsby

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@robertrigsby

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    Robert Rigsby replied to the topic Rilozole experience? in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 1 year, 11 months ago

    Hey, Y’all:  7/16/20; Bulbar onset. Chewing/swallowing difficulty came early. Proactively, I had placement of g-tube 10/28/19- SOOOO glad I did as all food/nourishment/water/med is by tube now. I mention this because I crush Rilozole and tube it in a 70ml syringe of water. After reading above experiences the idea I present is crush the tablet and…[Read more]

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    Robert Rigsby replied to the topic Do you have difficulty eating or drinking? in the forum Living With ALS 1 year, 11 months ago

    Hello, Y’all:                7/14/20

    I have a feeding tube and it is LITERALLY a LIFESAVER- wouldn’t be here w/out it! All nutrition/water via tube. My response to this subject is this, though: When my throat gets dry and I need to swallow a little water for relief I can get my head/chin in a certain position and while consciously swallow…[Read more]

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    Robert Rigsby became a registered member 2 years, 1 month ago

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      Amanda replied 2 years, 1 month ago

      Hello Robert,
      I’m Amanda, one of the co-moderators. Welcome to the ALS Forum. My family has an extensive history of ALS and I have been volunteering for medical research for many years. Many of our members are caregivers or pALS and they are a helpful and caring group.

      Please have a look around the forum. You are welcomed to respond to…[Read more]

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 2 years, 1 month ago

      Hello Robert,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]

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