Sonsu

Thanks George. How long you are having this issue.

Feeding tube my husband got is compatible with Enfit syringe.  But we did not get right supplies from hospital as well as our Doctor. It took us some time to figure this out. Plus it was a holiday weekend when my husband got discharged from hospital. So it was very stressful.

Not sure what lip seal means? Is there anything particular she suggested about head position

Thanks

What is ST?

We are in US in New Jersey.  My husband is diagnosed with ALS for little less than year now.  He used NIV at night and during day when he naps.  Hence was interested if anything that can improve lung functioning.

Hi Steve,

What is LVR kit. Are you using NIV.  Is LVR kit in addition to NIV?  How does it help you.

<p style=”text-align: left;”>Thank you Jim. What is the monthly cost of nursing care you get and how much of it is covered by insurance.</p>

Thank you Mike. What is monthly cost of nursing care you get and how much of it is covered by your insurance.

Are you based in US.

Thanks for sharing your experiences.  Post surgery is feeding is completely through tube? Also is there 100% loss of speech? Are you still having mobility or on wheel chair.

<p style=”text-align: left;”>Thank you Lisa. My husband does have long term disability with his employer. To the extent he gets Social Security disability benefit does his LT Disability carrier pays less?</p>
From the time you inform your employer how long did it take you to start getting disability benefit from employer policy provider. How does…[Read more]

<p style=”text-align: center;”>From where do you buy Clenbuterol.</p>