[Stacy]

I’m relatively new to being a caretaker for my dad who was recently diagnosed with ALS.  There is so much that I didn’t know and only through either my research on line or through my local ALS Association contacts that I’m finding out about things on how to care for my dad.  The medical staff are caring but I’m finding aren’t  very knowledgeable when it comes to this disease.  What would’ve been helpful for me at the beginning was tips on how to stay one step ahead on things that ALS patience need in each stage.  I know that every case is different, more common things like blood clots that I’m just now finding out is something common, unfortunately I didn’t know and am currently in the hospital getting that resolved.