Forum Replies Created

  • Stephen Greer

    Member
    June 17, 2020 at 7:17 pm in reply to: Do you experience muscle twitching?

    Danielle

    In addition to supplements, I take both Radicava (started 9/17) and Riluzole (started 9/19).

    I take many supplements based on the Duke ALS clinic study of 45 known ALS “reversals” that is published on the ALS Untangled site. I have also leveraged recent research linking microbiome health in the gut and neurological function.  ALS can take away many things, but not hope.

    Aloe Gut Health – 5ml – 1x

    Berberine – 500mg – 3x

    B-12 Complex – 1000mcg – 1x

    Centrum Multi Vitamin – 320mg – 1x

    Copper – 2.5mg – 2x

    Digest Basic / Essential Enzyme – 100mg – 1x

    D-3 – 25 mcg – 1x

    Fish Oil – 1000mg – 1x

    Glutathione – 500mg – 1x

    L-Carnitine – 500mg – 3x

    L-Glutamine – 1000mg – 1x

    Luteolin – 100mg – 1x

    Probiotic -50 Billion live – 1x

    Restore Gut Health – 5ml- 1x

    Spirulina – 500 mg – 3x2x

    Turmeric / Curcumin – 1800mg – 2x

    Zinc – 30mg – 2x

  • Stephen Greer

    Member
    June 16, 2020 at 3:57 pm in reply to: Do you experience muscle twitching?

    All,

    There have been many great posts and sharing of experiences on this topic and others. I have been a person living with ALS since early 2017.

    In addition to all of the supplements and stretching, I focus on a diet of 80-100 g. or more of protein a day to feed the muscles, etc.  Protein shakes are an easy way to help keep up the weight and provide fuel to stay in the fight.  In addition to all the supplements, I have also had success with chiropractic adjustments (weekly) that target legs/cramps and neck.

    Meditation and prayer before bedtime also helps on so many levels.  Live in the moment and be open to experimenting.  Every day is a gift; that is why it is called the present.

    Carpe diem,

    Stephen