ALS News Today Forums | Stephen O'Neill | Activity https://alsnewstoday.com/forums/members/stepheno/activity/ Activity feed for Stephen O'Neill. Mon, 06 Apr 2026 01:42:45 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 2b16e40f7b58dc74b8336cd308e56c13 Stephen O'Neill replied to the discussion Newly diagnosed? What do you want to know right now? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/newly-diagnosed-what-do-you-want-to-know-right-now/#post-22891 Fri, 14 Oct 2022 23:14:01 -0500 Reply to Newly diagnosed? What do you want to know right now?

Hi Dagmar, i hope you are well?

I was just wondering if anyone can point me to a pharmacy or supplier of the new drug Albrioza.

I am in Australia and am really struggling to find out where in Canada or the US i can actually buy the drug, as i am allowed to import it as an individual for my own therapy here to Australia.

Can anyone point me… Read more

]]> ff440955dcf42431c4b414b8e9b619f0 Stephen O'Neill replied to the discussion What's the latest news on AMX0035? in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/whats-the-latest-news-on-amx0035/#post-22556 Tue, 23 Aug 2022 22:58:26 -0500 Reply to What's the latest news on AMX0035?

Hi Sonsu, hope you are doing the best you can in our circumstances.

I use an NIV* at night, it took some getting used to and getting the pressures right, but i wouldn’t (couldn’t) go back now. Help with drooling issue, just a few tips i have found useful before i go on to the LVR Kit. I use a neoprine chin strap to keep my mouth closed,… Read more

]]> e970f51046754ea33f5116feb5e4d96e Stephen O'Neill replied to the discussion Would you seek out Albrioza treatment? in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/would-you-seek-out-albrioza-treatment/#post-22297 Wed, 13 Jul 2022 12:43:22 -0500 Reply to Would you seek out Albrioza treatment?

Hi there,

I am in Australia and have been looking in to obtaining Albrioza in Canada.

I have been in touch directly with Amymlyx Pharmaceuticals and they expect the drug to be available late July in Cananda, Here is Australia we have a scheme where y doctor can import it, but i need to find an outlet to buy it from like some of you… Read more

]]> 61ae3648e64ba1d876a357babc31005f Stephen O'Neill replied to the discussion What do you think of this new form of Radicava? in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/what-do-you-think-of-this-new-form-of-radicava/#post-22168 Fri, 17 Jun 2022 22:58:46 -0500 Reply to What do you think of this new form of Radicava?

Hi Everyone, hope you are all well.

I am keen to try the Radicava Ors, but i live in Australia, and it is not approved here yet.

I have a script from my doctors and can import the drug myself under the personal importation scheme or the SAS scheme, but i’m struggling to find anywhere to buy it online, can anyone help at all please?

Regards,

Stephen

]]> 9c2edbd1a7e51ad392fb225357e1aad9 Stephen O'Neill replied to the discussion What's the latest news on AMX0035? in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/whats-the-latest-news-on-amx0035/#post-21997 Tue, 24 May 2022 00:30:15 -0500 Reply to What's the latest news on AMX0035?

Hi Dagmar, hope you are well and still using your bubble machine?

I have an LVR kit now too which helps you pump air in to your lungs to expand them and stretch the muscles around the lungs and its helped enormously with my lung capacity, i just thought i would mention it as its easy to use and very helpful.

I am trying to find out if AMX0035… Read more

]]> 38e76445abdb74968d83942ba77c4b26 Stephen O'Neill posted a new activity comment https://alsnewstoday.com/forums/activity/p/14607/#acomment-15051 Sun, 09 Jan 2022 22:59:59 -0600 Hi Dagmar, i wanted to thank you for your advice on the Bubble Bottle, i have made one and although just having started to use it, i can see how it can make my lungs work in a non stressful way to improve capacity and strength, and look forward to the results, thank you. xoxo

In reply to - Stephen O'Neill became a registered member ]]> 5f7202f8258437b218fde51091f238d1 Stephen O'Neill replied to the discussion Has ALS changed your sleeping pattern? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/has-als-changed-your-sleeping-pattern/#post-21034 Tue, 16 Nov 2021 22:49:03 -0600 Reply to Has ALS changed your sleeping pattern?

Hi Everyone, Stephen here from Melbourne Australia.

Firstly, thank you all for your posts and contributions, it has led me to try many different supplements and hopefully they are doing some good, might be a bit to early to say for me for now. I was diagnosed Jan this year but started getting symptoms mid last year.

I had been having a lot… Read more

]]> 47c8147bed4ebbcb0a9ba8f6e2a7d571 Stephen O'Neill became a registered member https://alsnewstoday.com/forums/activity/p/14607/ Tue, 16 Nov 2021 22:06:25 -0600 4