Forum Replies Created

  • Bill Woods

    Member
    December 28, 2021 at 2:38 pm in reply to: Clinical trials

    Hi thee, I don’t know where you are writing from, but I would think that every ‘certified’ ALS Center can point you in the right direction. I URGE you to find one, as we ALL benefit by as much participation in clin trials as possible. There are MANY out there, some simple with others quite complex. IF you have any difficulty finding one through your ALS center, try one of the larger and active centers: 1] Healey Center at Mass General; 2] Johns Hopkins in Baltimore; ] Emory Univ in Atlanta. Good luck! If you answer where you live, someone on this site can help you find something close.

  • Bill Woods

    Member
    October 28, 2021 at 2:16 pm in reply to: Riluzole side effect

    Stomach problems on Riluzole are most common, like 1/3 of patients. I tried EVERYTHING including proton pump inhibitors to no avail. The the nurse practicioner recommended Pepsid Complete [over the counter]: it worked like a charm, now only occasional stomach aches [a few per year]. Hope this helps!