What I’ve learned from ALS
Each week I search the internet for interesting ALS related information or stories. Tonight I came across this post from a nurse who has cared for pALS. It list 8 things she has learned from her ALS patients. Her list is interesting and impressive, and good food for thought. https://www.independenceplus.com/a-nurses-perspective-8-things-i-learned-while-caring-for-patients-with-als/
I’ve learned a tremendous amount from our community members and from helping to care for several pALS in my family. My experiences and this community keep me grounded and focused. I’ve learned that ALS is different for each pALS. I’ve learned that living well can make living with ALS a easier. I’ve learned that mindfulness is for me (and I need to work on it). I’ve learned that even the smallest contribution, whether it be a post, a question, a $5 donation, participating in a clinical trial, a kind word, or sharing your story about ALS, makes a difference. I’ve learned that when someone has a rare disease we should not assume we know or understand what is like for them or thier loved ones just because we have had a similar experiences. I’ve learned that strength looks different on each of us. I’ve learned that each day is a blessing, even the tough ones! I’ve learned that regardless of what is going on in my life I will always do what I can to help find a cure, lift up a pALS, and to make a positive contribution to our community!
What have you learned from ALS? What have you learned from other forum members?
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