Alex Sajkovic
Forum Replies Created
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Hi Maya,
The only thing I could not do in 2017 before diagnosis in 2018 was push ups.
You’re going to learn to be reactive and proactive according to your needs. Trust your instincts … there is not much else in the toolbox. Read, of course, and socialize. Little by little over time you’ll learn coping strategies for your personal situation. Stay positive. Try to carry on as ‘normal’ for as long as you can. Over the years you may need to lighten up (lighter back pack etc.) Assistance of a walker or Whill electric personal vehicle. Other people to assist as caregivers is a likely scenario eventually. Even without ALS that’s everyone’s reality. We’re just advanced ;o)
Adapt best you can as time goes by. Never give up. Stretch, walk and eat healthy as possible.
Take care
Cheers
Alex
Ps.  If I had a guru, it would be Andrew Weil. And Dagmar’s always great for advice and positive vibes!!
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…unique or fun ALS awareness :
hello Dagmar,
we’ll be educating some of our neighbors around Haight-Ashbury this weekend,
about how ALS can interfere with your ability to get in or out of your apartment when it involves walking up and down stairs; and about how landlords can ‘allow’ you to put in a chair lift and then change their mind and try to silently evict you…even when the law is clearly against them for doing so
I’m not sure if this link will make it through please let me know thank you very much Sincerely, Alex
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Look into a MoLift, I got my 4 post gantry MoLift from Your Medical Store. It helps my wife Rose very much. It is not very technical. You can check it out on their website. I ordered mine and it came complete, but had to bring in extra help to install it. I also bought an Etac swift mobil tilt-2 roll in shower commode chair. I highly recommend it.
Good luck.
Alex
Venessa