Forum Replies Created

  • Ali Reza

    Member
    March 12, 2021 at 11:44 pm in reply to: Ibudilast (Ketas)

    Dear Amanda/Dear Dagmar, Many thanks for your reply and kind comment, the doctor said better not to use it but not very strict this doctor just accepts approved medicines.

    Thanks  a lot

  • Ali Reza

    Member
    September 1, 2021 at 12:54 am in reply to: Dude about diagnosis

    Hi, My mother had BP, in 20 month it progressed alot, it seems it is very Slow if it  is BP, but if one side of the face, test for Myastnia Graviss (sorry if my spelling is not correct).

    Wish you all the best

  • Ali Reza

    Member
    March 10, 2021 at 1:10 am in reply to: Ibudilast (Ketas)

    Dear Amanda,

    Hi, I want to start giving TUDCA to my mother, a bit afraid of side effects, if there is no side effects  I want to start it, can you help me on that?

     

  • Ali Reza

    Member
    March 10, 2021 at 12:44 am in reply to: Ibudilast (Ketas)

    Dear Martin, Hi, hope everything goes well and your pALS to be stopped by these medicines, but my mother has Bullbar Palsy, and was on radicava but her neurologist does not let her take radicava anymore due to her respiratory weakness, she uses bipap, but as you mentioned you are on ventilator and use radicava, I wondered if with breathing weakness people can use radicava?