• Aloha Frank became a registered member 2 years, 2 months ago

    • Hello Frank, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Dagmar and myself check in nearly every day and post topics for discussions.

      My family has a significant history of ALS. Over 14 family members have had or have ALS. We’ve volunteered for research and I know that I have a mutated SOD1 gene associated with ALS. My father was also a Veteran. Thank you for your service!

      Please have a look around at the ongoing discussions and feel free to chime in anytime. You are also welcomed to post comments and questions. The more discussion the better.

      Our members cover a wide range of people who have an interest in ALS. Some are pALS (patients with ALS), cALS (caretakers of pALS), doctors/medical professionals, and others have friends or loved ones with ALS. I hope you find the forums useful and informative. Please reach out if you have any questions or concerns.

      Again, welcome.


      • Thank you Amanda. I try to read as much information about this disease as possible. Reading about others who are doing their best to deal with it gives me strength to continue on. I learn more from them and their real life experiences than just about any other source.

      • Things are looking better than yesterday at least someone is going to contact me and help me get into a trial need all the help I can get thanks for all the help

    • Hello Aloha Frank,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a keyword in the forum’s search bar. If you have any questions, concerns, or even suggestions, just let me or Amanda (who shares co-moderator duties with me) know, and we will do our best to help you.

      Again, thank you for joining our forum – – We look forward to your comments and I look forward to chatting with you! Dagmar

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