Kathy stitz

Wayne, I’m so sorry.  That is so young to have this horrible diagnosis.   I will be thinking of your son and best wishes to him and to your family.  I have ALS as well and it is a devastating and debilitating condition.   I wish they had a cure for all of us who are suffering with this every day.  As far as stem cell therapy, I think it is really…[Read more]

David, sorry to hear you have covid and best wishes for a speedy recovery.

I totally understand your feelings, Marianne.  When you go to the doctor, you expect them to make you better. That doesn’t happen, though, with ALS.  There’s no cure for it and little that the doctors can do to help pALS.  I have often felt frustrated, disappointed, and sometimes angry.  I have also felt depressed and hopeless.   It’s hard to ad…[Read more]

Hi Jennifer,

You have shared your blog with us earlier this year in May- the new happiness with ALS blog! under the ALS Awareness Month forum.  Thanks so much!

Hi Mary Kate,

It really depends as to what will help.  I also have that issue and tried what you mentioned as well as the scopolamine patch without success.  Then I had Botox injections into my salivary glands so that has helped to control the excess saliva for me.

Wow, way to go Joe and David! Thank you for helping to raise awareness and funds for ALS research.   Best wishes to both of you.

Hi everyone, thank you for your posts and your suggestions.   I am just having a very difficult time with not being able to eat and have been losing weight as well.  I also have a lot of difficulty with speaking.  I’m trying to deal with all of these changes but it gets overwhelming.  I hope it will get easier soon.  Best wishes to all of you.

I’m revisiting this topic because today is my birthday and I’m thinking about all of you and hoping that all of us are able to celebrate many more birthdays.   As always, thank you all for your help and support.

Why did it take over 2 months to get the results?

I agree with Amanda but actually getting to talk to the doctor can be pretty difficult sometimes.

It seems like you have been doing a lot this summer, Marianne.  Having ALS definitely makes our lives more difficult in many ways but that’s great that you were able to travel to Colorado and have family and friends over as well!

That’s wonderful Mary! Thanks so much for sharing.

I have been going to so many doctors because of having ALS that I haven’t had much time to do anything else.  I also recently went to the Emergency Room and then was in the hospital for three days so I haven’t been having a good summer.  I hope other pALS have had a better summer than I have had.  It would lift my spirits to hear from other pA…[Read more]

Hi Amanda,

Thank you for your post.  I’m sorry to hear that you are experiencing so many difficulties and we are all wishing you all the best.  Thank you for all that you do to help pALS and their caregivers.

Hi Ginger,

Thank you for your post.  That’s wonderful that you are still able to do a lot of activities and that you have family and friends for help and support.  I admit I have not been coping with my ALS diagnosis very well and have often been very depressed about it.  It’s something that’s hard to accept but we really have no choice about it…[Read more]