Hi everyone!

As you all might know, May is ALS Awareness Month and we couldn’t let it pass by without marking its importance. We have some initiatives planned throughout May.

One of these is a Zoom call exclusively for ALS forum members to participate in. Our forum moderators Dagmar and Amanda will facilitate the conversation, asking… Read more

Hi everyone!

As you all might know, May is ALS Awareness Month and we couldn’t let it pass by without marking its importance. We have some initiatives planned throughout May.

One of these is a Zoom call exclusively for ALS forum members to participate in. Our forum moderators Dagmar and Amanda will facilitate the conversation, asking… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how COVID-19 is delaying rare disease and gene therapy trials.

ALS News Today · How COVID-19 is Delaying Rare Disease and Gene Therapy Trials

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how she copes with the stress and anxiety of being newly diagnosed with ALS.

ALS News Today · How to Cope With The Stress and Anxiety of Being Newly Diagnosed With ALS
Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

 

ALS News Today’s forums moderator, Amanda Sifford, discusses Dagmar’s ideas help a design student redesign a rollator!

ALS News Today · Reimagining the Rollator: Ideas to Help a Design Student Redesign a Rollator
Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how COVID-19 is causing ALS Awareness Month Activities to move to virtual settings and to online social media platforms.

ALS News Today · COVID-19 Causes ALS Awareness Month Activities to Move to Virtual Settings
Are you interested in learning more about ALS? If so, please… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how NORD is helping the rare disease community by opening the COVID-19 Financial Aid Program.

Are you interested in learning about financial assistance for pALS struggling during the pandemic? If so, please visit https://alsnewstoday.com/

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ALS News Today’s forums moderator, Amanda Sifford, discusses how BioNews and FFF are teaming up to provide resources for rare and orphan disease patient communities during the COVID-19 pandemic and beyond.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how a study indicates that Problems in Lipid Metabolism May Be Linked to Motor Neuron Disease.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses Dagmar’s tips on surviving Pandemic Pitfalls such as Compare and Despair.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how Next Generation Sequencing of Genes may help in the Diagnosing and Treatment of pALS.

ALS News Today · How Next Generation Sequencing of Genes May Help in the Diagnosing and Treatment of pALS
Are you interested in learning more about ALS? If so, please visit … Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how Dagmar’s Talking Myself into New Habits article can help pALS Talk Themselves into Talking More!

ALS News Today · “Talking Myself into New Habits” – A Column That Can Help pALS Talk Themselves into Talking More!
Are you interested in learning more about ALS? If so,… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses a literature review which suggests that FUS Mutations Cause Most Cases of ALS in Youth and Adolescents.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

What are your thoughts on this news? Let us know about it.

ALS News Today’s forums moderator, Amanda Sifford, discusses how ‘Hero’ Proteins Protect Cells from Toxic Clumps Underlying ALS.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Listen to this flash briefing episode and share your thoughts about it in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how Age and Sex Strongly influence ALS type and Symptoms.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts on this news? Let us know about it.

ALS News Today’s forums moderator, Amanda Sifford, discusses Dagmar’s Tips on handling stress during the COVID-19 Pandemic.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Did you enjoy these tips? Do you have any other you would like to share with us? Let us know about it.

ALS News Today’s forums moderator, Amanda Sifford, discusses How Proteins in Blood Cells May Be Markers of ALS and Its Likely Progression.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

What are your thoughts on this news? Let us know about it in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, Dagmar’s discusses strategies for facing Change.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

Did you enjoy this flash briefing? How do you adapt to change? We’d love to hear from you!

ALS News Today’s forums moderator, Amanda Sifford, discusses How the ALS Association Provided a Grant to Advance Treatment Aimed at Gut Microbiota.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Did you enjoy listening to this flash briefing? Share your thoughts with us.

ALS News Today’s forums moderator, Amanda Sifford, discusses Dagmar’s message about ALS Awareness: Minding Me While Minding the Message.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Do you usually raise awareness about ALS? If so, how do you do it? What are your favorite type of… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how a study shows that FAIM Protein Prevents, Reverses Mutant SOD1 Clumping.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

What are your thoughts on this news? Share your opinion in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how a study involving Machine Learning Links Depression and Quality of Life to ALS Caregiver Burden.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts one this news?

ALS News Today’s forums moderator, Amanda Sifford, discusses how a New Study suggests that a New Spinal Delivery Method Renders Stem Cell Therapy Safer and More Effective for ALS and Other Diseases.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts about it? Let us know in… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses Stepping onto the ALS Rating Scale.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

Did you enjoy this flash briefing? Let us know what you would like to listen to in a future episode. 

ALS News Today’s forums moderator, Amanda Sifford, discusses how Monkeys on a Neurotoxic Diet May Be a New Animal Model for ALS Research.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts about this flash briefing? Let us know about it.

ALS News Today’s forums moderator, Amanda Sifford, discusses how risk factors such as sports, head trauma, and herbicides may increase a person’s risk for ALS.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

Were you aware of these risk factors? Did this information surprised you? Share your… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how a NORD Webinar helps people by giving advice on starting a Nonprofit for Rare Diseases.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

Have you heard of this webinar? What are your thoughts about it? Let us know about it here:

ALS News Today’s forums moderator, Amanda Sifford, discusses how FDA Efforts to Bring Patients into Treatment Decisions Were the Focus of NORD Webinar.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

What are your thoughts about this flash briefing? Let us know about it.

ALS News Today’s forums moderator, Amanda Sifford, Living Well on the Rare Side!

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts about this flash briefing? Let us know about it.

ALS News Today’s forums moderator, Amanda Sifford, discusses how using assistive technology can help you be heard!

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

Do you use any assistive technology to help you in your daily life? If so, which one? Let us know about it the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how a Study Links Cognitive Impairment with Toxic Protein Clumps in ALS patients.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Have you heard of this study? What are your thoughts about it? Let us know about it in our… Read more

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ALS News Today’s forums moderator, Amanda Sifford, discusses how Bloom Science Granted Exclusive Option to License Gut Microbiome-based Therapies for ALS.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Have you heard of these therapies? What are your thoughts about it? Let us know… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how RARE Courage, a New Nonprofit have Partnered with All Wheels Up to Create a Survey Seeking to Improve Air Travel for Wheelchair Users.

 

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

Have you heard of this partnership? What… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how Single Injection of RNA Therapy Blocks Degeneration, Prevents Disease Progression in Mice Models of Familial ALS.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

Were you aware of this risk? Share your thoughts about it in the… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how a Scottish Study finds that diseases like ALS are a Common Cause of Death for Former Soccer Players. 

https://soundcloud.com/alsnewstoday/scottish-study-finds-diseases-like-als-are-a-common-cause-of-death-for-former-soccer-players

Are you interested in learning more… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how a a Phase 1 trial shows that Neuropore’s Potential ALS Oral Treatment was Found to be Safe and Well-Tolerated in Healthy Volunteers.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how there is A New Paradigm for the Future of ALS.

Are you interested in learning more about ALS? If so, please
visit alsnewstoday.com/

What are your thoughts on this news? Share them in the comment section below.

Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access to lifesaving treatments, the nation’s highest-ranking health official said.

What are your thoughts on this news? Share them in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how some speech difficulties for pALS are like Translating the Talking Boxes at the Drive-thru.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts on this news? Share them in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how AstroRx Increases Ability to Perform Daily Functions in ALS Patients.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts on this news? Share them in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses the winner of the 2020 “Buzz of BIO” award for Investigational Cellular Treatment won by BrainStorm Therapeutics.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts on this news? Join the discussion in the… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses What Not to Say to a Friend who has ALS!

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts about this flash briefing? Is there something you would like to add to Amanda’s list of things not to say to someone with… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses how the Answer Als Project is using technology and collaborative efforts to better understand and treat ALS and other diseases.

Are you interested in learning more about ALS? If so, please visit
alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how you can cruise through the slow lane while Living Well with ALS.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What do you think of this news? Listen to this podcast episode and share your thoughts in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how to Conquer the Gap Between ALS Diagnosis and Acceptance.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What do you think of this news? Listen to this podcast episode and share your thoughts in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how “Jumping Genes” linked to TDP-43 may be a possible cause of ALS.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What do you think of this news? Listen to this podcast episode and share your thoughts in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how to C.H.A.R.M. your way through the holidays!

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What do you think of this news? Listen to this podcast episode and share your thoughts in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how a childhood lesson helped Dagmar adjust to her ALS diagnoses and play the game of Life with a positive attitude!

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

Listen to this flash briefing episode and share your thoughts in the… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses why the ALS Association Golden West Chapter recognizes Mitsubishi Tanabe for ALS research and awareness efforts.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What do you think about this news? Listen to this flash briefing episode… Read more

ALS News Today’s forums moderator, Amanda Sifford, discusses the prevalence of ALS among Young Veterans Deployed in Post-9/11 U.S. Wars.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What do you think about this news? Listen to this flash briefing episode and share your thoughts in the comment… Read more