Forum Replies Created

  • In Romania there is not a clinc with that ALS …we had or neurologist who confirim that there are not such thing dr C.VASILESCU it is neurologist like all doctors with that profile he do reserch and put diagonses like othere one ..but that is it

  • I am from Romania ,in here there is no asocition,comunity don’t even care,and there is nothing besize baclofen😔 in Romania nobody cares in here you don’t get help ….that makes me more sad 😔😔😔😭😭 We don’t have ALS clinic in Romania ,i fight in court with social services they refus to put me legal as a care givet everithing gose so wrong 😭

  • Thankyou everyone for your answers ,i will try some of your advice and see what hapens ,i takcare him and my kids by my self and it feels so bad cause i can’t rest,eat,make a bath ,work…relax and many othere things i used to do …it feels like i am build to be selfish with my self …i feel tierd.And cause i feel tierd i would like to know what you or love ones take for sleep? My husband say he feels stifness in hes legs,arms and pain in hes shoulders that is why he can’t sleep more then one hour or 2 at night …and that kills me slowly.I need some advice what he can take to don’t take to feel more relax and not stif like a dead body.If he could be able to turn arund when he wants in bed ..he takes baclofen but that dosen’t help at all.

  • Iancu Alina

    Member
    July 6, 2022 at 7:45 am in reply to: Would you seek out Albrioza treatment?

    Hello! Where exactly we can find Albrioza in Canda? What pharmacy ? It looks like there is nowhere…i need the pharmacy name and a phone numbere.Thankeyou!