• Amanda and Profile picture of Debra KaufmanDebra Kaufman are now friends 2 years, 2 months ago

    • I am almost 3years now I was misdiagnosed for almost 2 year’s but I only have been diagnosed for 18 months ago 3 years 6 months, 2to5 life span average person only living for 3years guess I’ll owe ALS at least 6 months

    • Frankie – – I know how all the “official” descriptions of ALS and what it “can” do, can become a constant drumbeat in our brains. But, don’t get hung up on the predictions – – we all don’t leave our doctor’s office with an “expiration date” stanped on our forehead. So many advancements have been made during the past few years – – patients are living 10, 20 or more years with ALS. I have ALS friends still biking and moving…in their 8th year. I am in my 10th year (see my blog here: https://alsandwellness.blogspot.com/search/label/About%20Me ) You are in the right place here in the Forum – – we can help you with support, tips and motivation.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen


We're not around right now. But you can send us an email and we'll get back to you, asap.


Log in with your credentials


Forgot your details?

Create Account