• Amanda and Profile picture of Debra KaufmanDebra Kaufman are now friends 1 year, 2 months ago

    • I am almost 3years now I was misdiagnosed for almost 2 year’s but I only have been diagnosed for 18 months ago 3 years 6 months, 2to5 life span average person only living for 3years guess I’ll owe ALS at least 6 months

    • Frankie – – I know how all the “official” descriptions of ALS and what it “can” do, can become a constant drumbeat in our brains. But, don’t get hung up on the predictions – – we all don’t leave our doctor’s office with an “expiration date” stanped on our forehead. So many advancements have been made during the past few years – – patients are living 10, 20 or more years with ALS. I have ALS friends still biking and moving…in their 8th year. I am in my 10th year (see my blog here: https://alsandwellness.blogspot.com/search/label/About%20Me ) You are in the right place here in the Forum – – we can help you with support, tips and motivation.

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