Nancy L Worden

When my calendar finally completely crashed in early March,  I made the decision that I was going to take this time off to rest and heal. Last fall I moved my business into the bottom level of our house. I was so focused on the move that I forgot to do my physical therapy exercises. The repetitive motion of getting up out of chairs and off the…[Read more]

Hi Dagmar; In response your suggestion  of contacting ALSA about accessible hotels, that might be a good start but they will only have a list of hotels with accessible rooms. What they won’t have is a customer review of those rooms. I think what we need is a yelp- type app where we encourage PALS to review the places where they stay so that other…[Read more]

Hi Cate; I travel with my rollator a lot and I have learned that it is best to check it at the gate not with your baggage. This means that when you get to the gate you need to tell the ticketing agent to put a  claim tag on the rollator. They will give you a claim check and the important part is to remember to pick up the rollator near the door…[Read more]

What exactly does accessible mean?

Those of us who have some physical limitations are often looking for an accessible hotel room or restaurant. What I have learned over the years is there is no standard for this term and no policing of its use. The ADA has been federal law for almost 30 years and many public facilities are not in compliance.…[Read more]

Five or six days a week I do a 10 minute morning workout. This includes leg lifts, breathing exercises, and other  stretches I’ve learned in physical therapy over the years. Two to 3 times a week I ride my reclining trike either outside or inside on a trainer. This helps to keep my legs on lifting. Some days I do  standing balance exercises and a…[Read more]

Hi Amanda; I  have the SOD1 mutation and I also have the slow kind. Since May of 2017 I have been participating in the BIIB067 (originally  IONIS-SOD1 Rx) drug trial in San Diego at UCSD. I completed the phase 1 part of the trial in 2017 which was a double-blind and I’ve been participating in the continuing trial since February 2018. The c…[Read more]