@amkrzysko
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Andrea Krzysko replied to the topic Do you consider yourself a “hero” for living with ALS? How about a “survivor?” in the forum Living With ALS 1 month, 3 weeks ago
I consider myself a fighter. I have good days when I rejoice and bad days when I dig in my heels. I strive to tip the balance in favor of good days by planning ahead for what may happen and adjusting my attitude about what is important. I have professional and personal helpers who support me in ways that I never even knew existed. Mostly, I try to…[Read more]
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Andrea Krzysko changed their profile picture 2 months, 3 weeks ago
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Andrea Krzysko's profile was updated 2 months, 3 weeks ago
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Andrea Krzysko replied to the topic Social Death in the forum Living With ALS 2 months, 3 weeks ago
I have PLS and have been in a wheelchair for the past 5 years. When it came time to move to a motorized chair 2 years ago I elected to pay out-of-pocket for a power seat elevation system since Medicare did not pay for this feature. It has been a game changer for me in social situations since I can now talk face to face with others. It provides…[Read more]
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Andrea Krzysko became a registered member 9 months, 4 weeks ago
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Hello Andrea,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Hello Andrea,
I would like to personally welcome you to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with A…[Read more]
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