Forum Replies Created

  • Anthony Serda

    Member
    November 12, 2020 at 2:54 pm in reply to: Rilozole experience?

    Hey all,

    I’ve been taking Rilozole for 4-6 weeks and I’ve noticed a rash across me abdomen and palms. Has anyone else experienced this? One of my doctors says its not the meds, but its the only thing I’ve added to my routine.

  • Anthony Serda

    Member
    November 3, 2020 at 2:59 pm in reply to: Living Longer with ALS

    I was diagnosed 08/2020, so fairly recent. I’m less concerned with living longer and more concerned with living better. I’ve been doing lots of research and trying to find stem cell studies and trials, but there doesn’t seem to be many out there. My doctor asked me to join a trial, but 1/3 of participants will get a placebo and I don’t think I have a year to waste while trying to fight this disease. Has anyone done commercial Stem Cell?

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