Astrid

Thanks for your help and advice😊

I have had a lot of pain due to muscle weakness of my left shoulder. My arm is too heavy for my sholder muscles and because of lack of movement iT became more painfull. I have a good therapist who gives me advice about range of motions. And iT works for me.

Hi  Amanda i will get my first Covid shot april 14!  my  family members still do not know when , only my 86 years old dad has been vaccinated and he did not had any site effects.

What i dont Understand is why are there no developments for us pAls who have lost the  use of a hand or leg, there must be a lot of clever students in the world who can develope some kind of device for us so we can use that hand of leg again? Sort of an exoskelet?.

Hi Amanda i was a nurse before my ALS diagnoses. Now i had to stop working it was not possible anymore for me.                             In the Netherlands the first persons to get the vaccine are all the medical workers and by some mistake they send me an invitation too. I will not accept this vaccine because it is ment to be for a medical wor…[Read more]

I was asked bij tricals, they  contactend me by email if i was willing to participeer in this trail, i just have had a long day of tests and i wil get the results this week.(foregive me my English i Am Dutch) i feel iT is importent to help if we can, we need to find a cure for us all  as soon as possible time is not our friend  anymore. So i wi…[Read more]

Hi I  wish we had that choice, in the netherlands we only have Riluzol.

.Hi Susan I had and still have difficulties by accepting the ALS

diagnoses, but you sad  something that I will remember, you sad I accept the diagnosis but not the  prognoses, I Will keep that in mind. Thank you for that!

.Hi Susan I had and still have difficulties by accepting the ALS

diagnoses, but you sad  something that i will remember, you sad I accept the diagnosis but nog the  prognoses, I Will keep that in mind. Thank you for that!