ALS News Today Forums | Astrid | Activity https://alsnewstoday.com/forums/members/astrid/activity/ Activity feed for Astrid. Fri, 17 Apr 2026 15:42:52 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 6bd535f3c60e59e48e1e223733ef70c6 Astrid replied to the discussion Can anyone give advise in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/can-anyone-give-advise/#post-21019 Mon, 15 Nov 2021 00:22:56 -0600 Reply to Can anyone give advise

Thanks for your help and advice😊

]]> 9d358433b0f891fb8a1814cf0e78b707 Astrid replied to the discussion Are you in pain? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/are-you-in-pain/#post-19542 Tue, 15 Jun 2021 20:40:40 -0500 Reply to Are you in pain?

I have had a lot of pain due to muscle weakness of my left shoulder. My arm is too heavy for my sholder muscles and because of lack of movement iT became more painfull. I have a good therapist who gives me advice about range of motions. And iT works for me.

]]> e03fc48547cc31281c26e2fcf7db76a1 Astrid posted a new activity comment https://alsnewstoday.com/forums/activity/p/11148/#acomment-11212 Mon, 19 Apr 2021 21:53:54 -0500 Hi frank i will also having a lift so i can get to my sleeping and bathroom ! i live in a small house with lots of stairs and levels. Even the entree to the garden has a stair unfortunately that is stil a problem to solve, but maybe if my husband can find a way to get me down the stairs safely we can sit in the garden with our kids this summer.

In reply to - Aloha Frank posted an update Hi Kathy. Hope you’re having a reasonably good day today. All we can do is make the best of each and every day, as difficult as that can be. My wife, caregiver and a friend managed […] ]]> 191202bf8c596d163f83f56fd0f8fbac Astrid replied to the discussion Oh my COVID vaccine in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/oh-my-covid-vaccine/#post-18281 Tue, 06 Apr 2021 21:18:22 -0500 Reply to Oh my COVID vaccine

Hi  Amanda i will get my first Covid shot april 14!  my  family members still do not know when , only my 86 years old dad has been vaccinated and he did not had any site effects.

]]> c14c0fd956036f2c54e6c234f4a0d857 Astrid replied to the discussion Technology and ALS Research in the forum ALS News https://alsnewstoday.com/forums/forums/topic/technology-and-als-research/#post-18270 Mon, 05 Apr 2021 20:46:53 -0500 Reply to Technology and ALS Research

What i dont Understand is why are there no developments for us pAls who have lost the  use of a hand or leg, there must be a lot of clever students in the world who can develope some kind of device for us so we can use that hand of leg again? Sort of an exoskelet?.

]]> f7e94e1195971bdf68077eaa51ffdade Astrid replied to the discussion Has your State made the COVID-19 Vaccine available to pALS and caregivers? in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/has-your-state-made-the-covid-19-vaccine-available-to-pals-and-caregivers/#post-17394 Thu, 07 Jan 2021 22:07:17 -0600 Reply to Has your State made the COVID-19 Vaccine available to pALS and caregivers?

Hi Amanda i was a nurse before my ALS diagnoses. Now i had to stop working it was not possible anymore for me.                             In the Netherlands the first persons to get the vaccine are all the medical workers and by some mistake they send me an invitation too. I will not accept this vaccine because it is ment to be for a medical… Read more

]]> 128cc9246877bea6bc3356c4484d8410 Astrid posted a new activity comment https://alsnewstoday.com/forums/activity/p/8757/#acomment-9324 Tue, 15 Dec 2020 08:18:26 -0600 I am going to read your book Dagmar,
Dank je!

In reply to - Dagmar posted an update Hello everyone! Every once in a while, Amanda and I ask our forum members for their suggestions on topics to discuss. And with all the new members joining the forum, it’s time to ask […] ]]> 1be12f318089536f6c7e2fec1c8a23b1 Astrid posted a new activity comment https://alsnewstoday.com/forums/activity/p/8757/#acomment-9318 Mon, 14 Dec 2020 22:12:54 -0600 I have the feeling that all of the topics above are importend for me. At the moment i have trouble finding motivation for celebrating Christmas . How do you find new motivation, after been diagnosed ?
I also like to read about research and Clinical trails , i feel iT is importent to know that maybe there is hoop for a treatment in the nearby future?

In reply to - Dagmar posted an update Hello everyone! Every once in a while, Amanda and I ask our forum members for their suggestions on topics to discuss. And with all the new members joining the forum, it’s time to ask […] ]]> 504425c264de22917243b674714d490d Astrid replied to the discussion Getting involved in clinical trials in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/getting-involved-in-clinical-trials/#post-16832 Tue, 17 Nov 2020 22:41:26 -0600 Reply to Getting involved in clinical trials

I was asked bij tricals, they  contactend me by email if i was willing to participeer in this trail, i just have had a long day of tests and i wil get the results this week.(foregive me my English i Am Dutch) i feel iT is importent to help if we can, we need to find a cure for us all  as soon as possible time is not our friend  anymore. So i… Read more

]]> d0ac049ea5830737dbe564c0ea31fdac Astrid replied to the discussion Radicava - Home Infusion vs Infusion Center? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/radicava-home-infusion-vs-infusion-center/#post-16763 Tue, 10 Nov 2020 22:48:07 -0600 Reply to Radicava - Home Infusion vs Infusion Center?

Hi I  wish we had that choice, in the netherlands we only have Riluzol.

]]> 1eadf30ba35b1001c4febf32bdc97fdd Astrid replied to the discussion ALS Awareness Month Spotlight: Susan Gray in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/als-awareness-month-spotlight-susan-gray/#post-16631 Sun, 25 Oct 2020 23:48:10 -0500 Reply to ALS Awareness Month Spotlight: Susan Gray

.Hi Susan I had and still have difficulties by accepting the ALS

diagnoses, but you sad  something that I will remember, you sad I accept the diagnosis but not the  prognoses, I Will keep that in mind. Thank you for that!

]]> 8f00fd43a21db8e226f6dd4c072e12e3 Astrid replied to the discussion ALS Awareness Month Spotlight: Susan Gray in the forum ALS Awareness Month https://alsnewstoday.com/forums/forums/topic/als-awareness-month-spotlight-susan-gray/#post-16630 Sun, 25 Oct 2020 23:46:16 -0500 Reply to ALS Awareness Month Spotlight: Susan Gray

.Hi Susan I had and still have difficulties by accepting the ALS

diagnoses, but you sad  something that i will remember, you sad I accept the diagnosis but nog the  prognoses, I Will keep that in mind. Thank you for that!

]]> 5a4690ae8a1a756961b0a07a52b88af3 Astrid posted a new activity comment https://alsnewstoday.com/forums/activity/p/8305/#acomment-8411 Thu, 22 Oct 2020 21:59:34 -0500 Hi Dagmar you are my hope for the future, you let us see how we can live with ALS ,i Am still fyghting to find my wat back to Some soort of life again. At back in live again. At the moment we Will thank you for your positief collums the help us alot thanks!

In reply to - Astrid became a registered member ]]> dffb07953d7026aafb083542d355d71d Astrid posted a new activity comment https://alsnewstoday.com/forums/activity/p/8305/#acomment-8410 Thu, 22 Oct 2020 21:47:57 -0500 Hi Amanda Nice to meet you and thank you for your kind words.

In reply to - Astrid became a registered member ]]> 68edcd74b5a4efb01d2f2a1f1003c2a7 Astrid became a registered member https://alsnewstoday.com/forums/activity/p/8305/ Sat, 17 Oct 2020 16:52:43 -0500 4