@azfootball
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DanD changed their profile picture 1 year, 3 months ago
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DanD replied to the topic New study shows ALS/MND damage to nerve cells can be repaired by improving the energy levels in mitochondria in the forum Research Topics 1 year, 3 months ago
🙏
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DanD replied to the topic No cure for ALS in sight in the forum Living With ALS 1 year, 6 months ago
If you really want to know what my days are like watch my video. – Dan D. Montgomery
~ Dreams Flame Out ~
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DanD replied to the topic Getting involved in clinical trials in the forum Living With ALS 1 year, 7 months ago
I’ve begged my VA doctor to get me into one of the many clinical trials for ALS treatment but he failed me. I’ve contacted several clinical trials myself but have been refused treatment for dumb reasons like my diagnosis was more than 2 years ago, my breathing is too weak or that I am just too old. I have tried to invoke the Right-To-Try Law and…[Read more]
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DanD replied to the topic AMX0035 in the forum Research Topics 1 year, 7 months ago
Since diagnosed with ALS I’ve been living with this shadow overhead and it feels like I’ve been sleeping with a cloud above my bed. I’ve been suffering for so long, trapped and I just can’t seem to move on. I’ve been hiding all my hopes and dreams away just in case a cure is found someday. I’ve been setting aside time, to clear a little space…[Read more]
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DanD started the topic There's got to be something for my soul somewhere. in the forum Living With ALS 1 year, 7 months ago
Since diagnosed with ALS I’ve been living with this shadow overhead and it feels like I’ve been sleeping with a cloud above my bed. I’ve been suffering for so long, trapped and I just can’t seem to move on. I’ve been hiding all my hopes and dreams away just in case a cure is found someday. I’ve been setting aside time, to clear a little space…[Read more]
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Kathryn F. Kennedy and
DanD are now friends 2 years ago -
Amanda and
DanD are now friends 2 years ago -
DanD replied to the topic NurOwn in the forum Living With ALS 2 years, 1 month ago
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DanD replied to the topic Finding the funny – – even in ALS?? in the forum Living With ALS 2 years, 2 months ago
~ Cowboy’n For Dummies ~
I retired from my government job in Arizona (architectural designer) where I prepared the construction drawings and specifications for the remodeling of state owned buildings and moved to East Texas (Bulah, TX, 8.4 miles south of Rusk on FM 23) with my “Cowboy’n For Dummies” book 4+ years ago to become a real cow…[Read more]
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DanD replied to the topic ALS and Veterans in the forum Diagnosis Information and General Questions 2 years, 7 months ago
Mike Company, 3rd Battalion, 5th Marine Division, USMC veteran…… For over a year the doctors back at the VA in Palestine, Texas gave me one missed diagnosis after another. I became very angry and frustrated. I nearly stopped breathing. I lost strength and weight (50+ pounds). I gave my Texas ranch away in January 2016, my piece of heaven on ear…[Read more]
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Dan,
Thank you for your service and everything you sacrificed for our country. I grew up a Navy brat and I watched my father serve, retire and move back to South East Missouri to his little piece of heaven.
I’m so sorry that the VA has let you down on so many levels. That is very unfair to say the very least.
Your descriptive writing is…[Read more]
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Dan,
I also wanted to thank you for sharing your story on the forum. That is very brave. We have a wonderful and supportive community here on the ALS forum, and I am sure you post and the comments will help others.
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DanD replied to the topic How do you answer people when they ask, “How are you?” in the forum Living With ALS 2 years, 7 months ago
How am I today? Some days are better than others. Some are mothers. I ain’t even gonna lie. Some days, I don’t wanna get up, I just wanna give up. Don’t even get me started on some nights.
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DanD became a registered member 2 years, 7 months ago
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Hello Dan, Welcome to the forum! I am one of the forum moderators, as well as a person living with ALS; I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. The easiest way to see what is current is to click…[Read more]
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Hello DanD, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]
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