@b-s
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Brian Stanfield replied to the topic Do you consider yourself a “hero” for living with ALS? How about a “survivor?” in the forum Living With ALS 4 months ago
Yes Katie – I’m a Striver!
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Brian Stanfield replied to the topic Preventative Care After Being Diagnosed With ALS in the forum Living With ALS 4 months ago
I try to visit the dentist twice a year. My dentist has a large room where they can clean my teeth without me having to leave my power chair – just a little tilt & recline. If your dentist can’t accommodate your mobility needs – ask around for one who can.
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Brian Stanfield replied to the topic Do you change your eating habits when you’re out in public? in the forum Living With ALS 4 months ago
ALS has certainly changed the way we eat. I struggle to find something ALS hasn’t changed in the 19.5 years since my dx. I still enjoy eating and drinking without the use of a feeding tube. My favorite- a thick cut, well marbled ribeye, medium rare with some sauteed mushrooms, and the soft buttery middle of french bread. A 10 oz steak is a 45…[Read more]
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Brian Stanfield replied to the topic Do you consider yourself a “hero” for living with ALS? How about a “survivor?” in the forum Living With ALS 5 months, 2 weeks ago
Hero? No- I’ve done nothing extraordinary or courageous.
Survivor to the detriment of others. Survivor’s guilt? Yep.
I’ve got regular human-like emotions + ALS shit piled on top.
Great days, terrible days, and everywhere in between.
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Brian Stanfield replied to the topic In Memory of Rick Jobus in the forum In Loving Memory 8 months, 3 weeks ago
Rick Jobus was a warrior. He fought the good fight courageously. Rest in peace Brother.
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Brian Stanfield replied to the topic Carbon fiber vs plastic AFO in the forum Mobility Aides, Assistive Technology and Medical Equipment 9 months ago
Another vote for carbon fiber.
I was fitted for a large plastic AFO shortly after my dx in 2003. I was happy with it at first, until I did some traveling and saw the braces that other pals were sporting. When we got home, the first call I made was to the orthotist. He made sure that I got exactly what I wanted, this time covering every option…[Read more]
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Brian Stanfield became a registered member 1 year, 7 months ago
Hello Brian, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
Hello Brian,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]