[carene]

I was diagnosed the end of June. In July I went to 3 out of state weddings for family members. This weekend we are going to see some friends who live in the mountains in ShowLow AZ. In October we are going to a family reunion in Idaho. Right now even though it’s exhausting I still enjoy traveling and spending time with family. All of my children live in Arizona except one…I am grateful to esee them frequently. I don’t have any idea what to expect in the future months. I have my first ALS Clinic appointment July 31st. I have already started on Baclofen and Rizuzole. After my first clinic appointment I will start on Radicava ORS. I really appreciate this group. I believe in positive thinking and I feel that from this group….so thank you.

[carene]

I love that you are traveling. I was diagnosed in February 2024. We have been on two trips and both were fairly easy. My husband and I met up with all of his siblings in St. George Utah. We didn’t do a lot. We mostly just visited with one another since it had been a while. October of this year we went to Idaho where we have a lot of family and the we had a big family reunion. It was pretty awesome! We rented an Airbnb that used to be a church and they turned it into this huge fun place that can sleep 70 people. It has pickle ball, volleyball, basketball, a zip line and a Rockwall. It has a room with video games, eating area was very large and able to accommodate our large group of 70. It was so much fun to be with my mom and siblings and all of their children and our children. It was an easy place to be able to visit and have a good time the most difficult part was the stairs. I mostly stayed in the main common area. I did have help to go up the stairs from family members just to check out the other areas. We flew there on both trips and I find flying to be fairly easy so far I was able to use the wheelchair and have early boarding access to get settled. We are going to Disneyland in California in February for my granddaughter’s birthday. I love Disneyland and wish I could ride on all the roller coasters. I will probably have to settle for some of the slower more relaxed rides. We will be there with all of our children so we will be fun no matter what we do.

[carene]

I find the heat more difficult than ever before because I am in a neck brace. It’s hot and sweaty and gives me a rash. A sweet friend of mine made a sleeve out of satin fabric to slide over the brace. It helps some not to have it rub my neck raw.