[Cheryl]

Hello Dick,

My husband was diagnosed with Bulbar ALS Jan. 2020.  He is on all the same medication as your wife:  Radacava, Nuedexta and Riluzole.  We’ve just added the Relyvrio about 1 month or so.  Saliva has been a big problem to control, but he has been on transdermal patches for at least a year.

I’m glad to hear your wife is doing as well.  My husband also still has enough strength to putz around the house some.  His arms and neck muscles are giving way however.

My big question:  He has fairly recently been giving off a fairly pungent odor on his person.  I don’t know whether this comes from all the drugs he takes, or the drooling aspect, or just part of the disease process.  Have you heard others with ALS complaining about this odor issue?  He does shower every other day so cleanliness is not the cause I don’t believe.  I’ll just throw this question out, any thoughts would be appreciated.

Thank you and God Bless !!