@ckuhtz
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CHERYL A KUHTZ replied to the topic Tips for adjusting to living with a PEG (feeding tube) in the forum Living With ALS 1 year, 7 months ago
I recently got my feeding tube. My supine vital lung capacity was in the 60s, and I wasn’t able to get adequate hydration, because I choke easily on liquids. I decided to move forward with the feeding tube even though I can eat real food without choking.
The surgery was not a big deal, and the tube is not as annoying as I thought it would b…[Read more]
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Kathryn F. Kennedy and
CHERYL A KUHTZ are now friends 2 years, 2 months ago -
Amanda and
CHERYL A KUHTZ are now friends 2 years, 2 months ago -
CHERYL A KUHTZ replied to the topic Let's play the game: “a new definition of A-L-S” in the forum ALS Awareness Month 2 years, 2 months ago
A-accept
L-learn
S-shift
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CHERYL A KUHTZ changed their profile picture 2 years, 3 months ago
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CHERYL A KUHTZ replied to the topic Risk Factors in the forum Research Topics 2 years, 5 months ago
Dagmar, I have not had any adverse reactions to the L-serine. I take 15 grams in the morning mixed in orange juice and 15 grams in the early evening with juice.
Cheryl
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CHERYL A KUHTZ posted a new activity comment 2 years, 5 months ago
Could you purchase L-serine on Amazon and continue therapy without being part of the study?
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I was referring to Relmasemitiv. I was in phase 2 of that & have wanted it ever since I discovered I received the active. Thinking seriously of l-serine but not sure I want to do 30 g/day. Thanks for your advice on Amazon.
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CHERYL A KUHTZ replied to the topic Risk Factors in the forum Research Topics 2 years, 5 months ago
I am part of the clinical trial that Dr. Stommel is conducting at Dartmouth-Hitchcock, and I have been taking 30 grams of L-serine daily. It’s probably too soon to tell if it’s helping, but I think the research is quite promising. It isn’t a cure, but the human subjects in the small initial trial as well as the vervets have shown a significant r…[Read more]
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CHERYL A KUHTZ became a registered member 2 years, 9 months ago
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Hello Cheryl, Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]
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Hello Cheryl,and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]
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