[Delbert Mitchell]

I have been excluded from many possible trials due to the fact I was diagnosed in 2014. Another factor is that most of these trials are on the east coast or midwest which limits ALS participants from participating. I live in Nevada, and the closest trial centers are in Los Angeles, San Diego, or San Francisco, and yet we have a Cleveland Clinic here in Las Vegas, but they never consider people living out of these large metropolitan areas. My ALS has been very slow progressing, and my neurologist is amazed at how slow that progression is. The trials are definitely skewed to those ALS patients who are under three years, and it’s very discriminating to the rest of the ALS population.

[Delbert Mitchell]

Like your husband, I suffer with leg spasms, but I also suffer with spasticity that keeps me awake at night. It’s hard to mentally relax in bed so that your body can relax. Baclofin helps, but I still have days where it’s difficult to sleep. What I have done (I don’t know if it’s healthy or not) is, I take an Aleve capsule occasionally when I have these difficulties. I take the Baclofin pill a couple of hours before bedtime, then the Aleve just before getting into bed. The Aleve relaxes my nerves and muscles. I don’t do it all the time, only when I have anxiety over not getting to sleep. Check with your doctor for any issues mixing prescriptions and OTC medications.