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Eric Barnett started the topic MMN in the forum Diagnosis Information and General Questions 3 months, 2 weeks ago
I was diagnosed in 2019 at the University in Seattle Washington. I recently seen this ad on Facebook for MMN and was wondering thoughts from everybody else. I have the symptoms to a T ! Anyone else ever check this out? I know diagnosis is always hard so I guess there’s always those questions in my m…[Read more]
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Eric Barnett changed their profile picture 2 years, 1 month ago
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Eric Barnett changed their profile picture 2 years, 1 month ago
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Eric Barnett replied to the topic Very very nervous … dont know what to do in the forum Diagnosis Information and General Questions 2 years, 1 month ago
Happy birthday. I turned 60 back in November. We’ve all been there as others have said. Wishing you the best!
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Eric Barnett replied to the topic Rilozole experience? in the forum A Forum for ALS Caregivers 2 years, 10 months ago
When I first started taking it it gave me severe stomach pains. Did that for about 3 months. Stopped for about 4-5 months.
started back up for about 6 months. No more for me. Felt like there was heavy weights on my liver/diaphragm area.
I did not experience dizziness though. -
Eric Barnett replied to the topic ALS Awareness Month Spotlight: Walter Durk in the forum ALS Awareness Month 3 years ago
Yes an Inspiration for sure !
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Eric Barnett replied to the topic Diagnosis and ALS in the forum Diagnosis Information and General Questions 3 years, 1 month ago
Mine started out in my right hand/arm. Atrophy, weakness & lack of coordination.
GP sent me to get nerve test suspecting carpal tunnel.
That guy said nope not carpal tunnel it’s coming out of your neck region. Up Next was an MRI on my neck. They did find a problem with three of the disc. So off I go see a spine and brain surgeon.
He says sy…[Read more] -
Eric Barnett replied to the topic 2020 ALS Walk-a-thon! in the forum ALS Awareness and Advocacy 3 years, 2 months ago
How do I find out if there’s one near me?
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Kathryn F. Kennedy and
Eric Barnett are now friends 3 years, 2 months ago -
Eric Barnett replied to the topic Do you experience muscle twitching? in the forum Living With ALS 3 years, 2 months ago
Most of my twitching is concentrated in my right arm and hand. Sometimes it’s calm while other times very hard to eat with a fork or spoon. Quite a bit of upper body atrophy.
So far legs are holding up. -
Eric Barnett replied to the topic Radicava? – – What advice, comments or tips do you have? in the forum Living With ALS 3 years, 3 months ago
I don’t understand why this isn’t available in pill form?
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Amanda and
Eric Barnett are now friends 3 years, 4 months ago -
Eric Barnett replied to the topic Does 2020 hold a new future for ALS? in the forum Living With ALS 3 years, 4 months ago
I’m a year into my diagnosis now. I hope the best to everyone!
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Eric Barnett replied to the topic Diet and Supplements in the forum Living With ALS 3 years, 7 months ago
I too quit taking Riluzole. Lots of pain between chest and belly button area. Tried 1st time for 2 months. Took a break for 3 months then went back on for about 4 months. Pain wasn’t worth it.
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Eric Barnett became a registered member 3 years, 7 months ago
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Hello and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like to post but would like some assistance, just r…[Read more]
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Hello Eric, Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS; I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. The easiest way to see what is current is to click…[Read more]
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