JULIE SUAREZ
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Thank you all for your continued responses, experiences and thoughts! I’m still debating but appreciate all the input.
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Thank you both for your input. It has been a very long road to getting the porta-cath appointment scheduled and I’m left wondering, because that’s how my brain works, was the delay for a reason. My concern is that as of right now, thank God, I’m able to walk with AFO’s and the use of a cane and the first side effect listed is that it may cause gait problems. Initially, I was 100% in and anything that might help I would try. And, I do have seasonal asthma and that is a possible contraindication too!
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I was just diagnosed with ALS last week and after 12 months that started with bilateral drop foot but mostly my RT foot. My initial diagnosis at the end of October was Guillian Barre Syndrome. El Paso is medically underserved and frankly I had doctor’s argue with me that my RT foot wasn’t a problem. After it was really bad and ambulating on an out-of-town work trip was a problem I finally talked to my chiropractor and he immediately referred me for MRI. I had broken my LT foot in September and he knew I was dealing with ortho docs but…
My family is encouraging me to get a second opinion. Dagmar where in Tucson did you go? We went to the Mayo Clinic in Scottsdale last week.