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Esmeralda Trinidad

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@etrinidad7

@malonekelley If you and everyone believes the miracles will happen View
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    Esmeralda Trinidad posted a new activity comment 1 month, 2 weeks ago

    I’m sure you and everyone here does

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    Esmeralda Trinidad posted an update 1 month, 2 weeks ago

    @malonekelley If you and everyone believes the miracles will happen

    • Profile picture of Susan
      Susan replied 1 month, 2 weeks ago

      I do believe miracles happen all the time, wether we are chosen to receive is up to God, and our FAITH!

      • Profile picture of Esmeralda Trinidad
        Esmeralda Trinidad replied 1 month, 2 weeks ago

        I’m sure you and everyone here does

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    Esmeralda Trinidad replied to the topic Relyvrio in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 months, 2 weeks ago

    I have been taking it for almost a week and I have not noticed
    any side effects

  • Profile picture of Esmeralda Trinidad

    Esmeralda Trinidad replied to the topic Sleeping in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 6 months ago

    I have decided to sleep in a power recliner and it has been working for me because I can’t purchase the bed that’s way out of my budget

  • Profile picture of Esmeralda Trinidad

    Esmeralda Trinidad replied to the topic What's the latest news on AMX0035? in the forum Research Topics 6 months, 4 weeks ago

    Stephen

    I forgot to mention that I live in North Carolina, USA.

    I have sent you an email from my personal email and I hope that you can help me obtain an LVR.

    Thank you for your support

  • Profile picture of Esmeralda Trinidad

    Esmeralda Trinidad replied to the topic Would you seek out Albrioza treatment? in the forum Research Topics 8 months ago

    Hi Cynthia,

    I have a question about the sodium phenylbutyrate,  where I can purchase it and how much is the cost?
    Understanding that any medication for the pALS is almost impossible.

    Thank you for your help

     

  • Profile picture of Esmeralda Trinidad

    Esmeralda Trinidad posted a new activity comment 9 months, 3 weeks ago

    Thank you so much for your tips on how to keep going and your positive attitude. God bless

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    Esmeralda Trinidad posted an update 9 months, 4 weeks ago

    @dagmar-munn
    Hi Dagmar, I hope that you’re doing well. I have a question about the bubble machine that you are using and where did you purchased the machine and can you tell me how much is the cost?
    I appreciate any information that you can provide

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 9 months, 3 weeks ago

      Hi Esmeralda, it is less of a “machine” and more of a “bubble bottle.” It’s a simple setup that can be used for home practice to help strengthen the diaphragm muscle. In this post, I have a photo of the one I use plus additional helpful information about breathing. I insert flexible tubing into a plastic bottle that is three-quarters full of w…[Read more]

      • Profile picture of Esmeralda Trinidad
        Esmeralda Trinidad replied 9 months, 3 weeks ago

        Thank you so much for your tips on how to keep going and your positive attitude. God bless

  • Profile picture of Esmeralda Trinidad

    Esmeralda Trinidad became a registered member 10 months ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 10 months ago

      Hello Esmeralda,

      Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing…[Read more]

    • Profile picture of Amanda
      Amanda replied 10 months ago

      Hello Esmeralda,
      Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

      We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an e…[Read more]

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