@etrinidad7
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Esmeralda Trinidad posted a new activity comment 1 month, 2 weeks ago
I’m sure you and everyone here does
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Esmeralda Trinidad posted an update 1 month, 2 weeks ago
@malonekelley If you and everyone believes the miracles will happen
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Esmeralda Trinidad replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 2 months, 2 weeks ago
I have been taking it for almost a week and I have not noticed
any side effects -
Esmeralda Trinidad replied to the topic Sleeping in the forum A Forum for ALS Caregivers 6 months ago
I have decided to sleep in a power recliner and it has been working for me because I can’t purchase the bed that’s way out of my budget
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Esmeralda Trinidad replied to the topic What's the latest news on AMX0035? in the forum Research Topics 6 months, 4 weeks ago
Stephen
I forgot to mention that I live in North Carolina, USA.
I have sent you an email from my personal email and I hope that you can help me obtain an LVR.
Thank you for your support
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Esmeralda Trinidad replied to the topic Would you seek out Albrioza treatment? in the forum Research Topics 8 months ago
Hi Cynthia,
I have a question about the sodium phenylbutyrate, where I can purchase it and how much is the cost?
Understanding that any medication for the pALS is almost impossible.Thank you for your help
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Esmeralda Trinidad posted a new activity comment 9 months, 3 weeks ago
Thank you so much for your tips on how to keep going and your positive attitude. God bless
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Esmeralda Trinidad posted an update 9 months, 4 weeks ago
@dagmar-munn
Hi Dagmar, I hope that you’re doing well. I have a question about the bubble machine that you are using and where did you purchased the machine and can you tell me how much is the cost?
I appreciate any information that you can provide-
Hi Esmeralda, it is less of a “machine” and more of a “bubble bottle.” It’s a simple setup that can be used for home practice to help strengthen the diaphragm muscle. In this post, I have a photo of the one I use plus additional helpful information about breathing. I insert flexible tubing into a plastic bottle that is three-quarters full of w…[Read more]
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Thank you so much for your tips on how to keep going and your positive attitude. God bless
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Esmeralda Trinidad became a registered member 10 months ago
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Hello Esmeralda,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing…[Read more]
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Hello Esmeralda,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an e…[Read more]
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I do believe miracles happen all the time, wether we are chosen to receive is up to God, and our FAITH!
I’m sure you and everyone here does