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Fatimah

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@fatimah

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    Fatimah replied to the topic Tips for adjusting to living with a PEG (feeding tube) in the forum Living With ALS 1 year, 6 months ago

    Hello  my mother has bulbar ALS and 6 months ago she had peg tube connected to her stomach.  At the beginning the formula was disturbing her stomach, causing  pain and diarrhea. We change the formula to jevity . All the medication has to be crushed. If you reach the point of chocking your food , it is critical and having PEG feeing is the co…[Read more]

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    Fatimah replied to the topic Do you have difficulty eating or drinking? in the forum Living With ALS 2 years, 1 month ago

    Thank you Dagmar .

    You spread positive energy as usual.

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    Fatimah replied to the topic Do you have difficulty eating or drinking? in the forum Living With ALS 2 years, 1 month ago

    My mother diagnosed with ALS 2 years ago with bulbar type.

    She has difficulties whith swallowing. We noticed she lost weight  and lost her appetite as well.
    <p style=”text-align: center;”>She can not keep the liquid in her mouth , she adapted now by taking small amount of liquid and eating soft,wet food with sauce.</p>

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    Kathryn F. Kennedy and Profile picture of FatimahFatimah are now friends 2 years, 2 months ago

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    Amanda and Profile picture of FatimahFatimah are now friends 2 years, 3 months ago

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    Fatimah replied to the topic Stem Cells – Neoronata-R in the forum Research Topics 2 years, 3 months ago

    <p style=”text-align: left;”>Hello everyone</p>
    I took my mother , 70 years old, last February to Ukrainian stemm cell centre.

    They claimed she will notice some improvement and the progression will be sslow. She has bulbar ALS affecting her speech and swallowing  mainly.

    Unfortunately,  after 3 months of the stem cell, we did not notice any i…[Read more]

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    Fatimah became a registered member 2 years, 9 months ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 2 years, 9 months ago

      Hello Fatimah, Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS; I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]

    • Profile picture of Amanda
      Amanda replied 2 years, 9 months ago

      Hello Fatimah, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]

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