• Frankie a reex posted an update 1 year, 4 months ago

    Well I haven’t came 100% to grips yet with this disease ALS, everything that I do is a challenge just to get dressed is mine blowing all I really do is figure out ways to die..man I was always full of life now I’m full of thoughts of death…sad truth

    • Hi Frankie – – yes, it’s a new learning experience to teach ourselves how to live our lives while living with ALS. I too was surprised at the slowness of my movements, getting dressed was in itself a “workout” and, the dips in energy were new too. But you/we still have our brains – – and can figure out creative ways to keep our lives moving forward despite our ALS. It helped me to imagine my body had a re-boot, and I was back to default, factory settings – – and had to relearn/reteach my body how to do previously known movements. But, it is possible… I invite you to read about my experiences:

      Are You Stuck in the ALS Waiting Room?


      When We Do Something, Something Happens

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen


We're not around right now. But you can send us an email and we'll get back to you, asap.


Log in with your credentials


Forgot your details?

Create Account