• Frankie a reex posted an update 1 year, 2 months ago

    Hello everyone well I just don’t like going to sleep because I know that when I wake up a little bit more of me will have died I’m having so much trouble breathing everyone wants me to allow my doctor’s to put a breathing tube in I just want allow that no mechanical help to prolong life….this is on my DNR order I don’t know of any other options at this time I am fighting this disease all by myself no family friends they gave up on me when I ran out of money sad my thoughts are not good at all dying is all I think about anymore I was always a very lively person always on the go working 12 16 hour days now this disease

    • Frankie – – has the local ALS Association (ALSA) been in touch with you at all? The ALSA Care Coordinator can offer help and ideas for when living alone with ALS. Let us here in the forum know if we can offer suggestions to help you as well.

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