Geison

[Geison]

Hello,
My name is Geison, I’m Brazilian, my family is affected by ALS family type with genetic error in SOD1. I received the diagnosis last year, the doctor who accompanies me has the proposal to start with medication this year, this is solving the bureaucratic issues. I will leave the biogen website that reports con entering the study. https://www.biogen.com/en_us/als-community-update.html

[Geison]

Hello Amanda,

My name is Geison, my family is affected by ALS familial type with genetic error in SOD1. I received the diagnosis last year, I follow your posts, congratulations for the fight on our behalf, I would like to talk to you. I’ll leave my e-mail [email protected]

[Geison]

Hello,
I have the proposal to start with medication this year, this is solving the bureaucratic issues. You could share with us your experience/results with using tofersen.
thanks

[Author]

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