Forum Replies Created

  • Geison

    Member
    September 14, 2021 at 12:07 pm in reply to: Any news from Tofersen phase III clinical trial?

    Hello,
    My name is Geison, I’m Brazilian, my family is affected by ALS family type with genetic error in SOD1. I received the diagnosis last year, the doctor who accompanies me has the proposal to start with medication this year, this is solving the bureaucratic issues. I will leave the biogen website that reports con entering the study. https://www.biogen.com/en_us/als-community-update.html

  • Geison

    Member
    September 14, 2021 at 11:35 am in reply to: Pre fALS –

    Hello Amanda,

    My name is Geison, my family is affected by ALS familial type with genetic error in SOD1. I received the diagnosis last year, I follow your posts, congratulations for the fight on our behalf, I would like to talk to you. I’ll leave my e-mail [email protected]

  • Geison

    Member
    September 14, 2021 at 11:45 am in reply to: Any news from Tofersen phase III clinical trial?

    Hello,
    I have the proposal to start with medication this year, this is solving the bureaucratic issues. You could share with us your experience/results with using tofersen.
    thanks