@getup4als
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Lazar Kogan replied to the topic Best Advice or Information in the forum A Forum for ALS Caregivers 2 years, 9 months ago
The best and most informative advises came from two sources. The first was the local chapter of the ALS Foundation and the second was someone who’s spouse past away from ALS a couple of years back.
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Lazar Kogan posted an update 2 years, 10 months ago
I am looking for recommendations for the best sipping cup for patient with bulbar. My wife cannot suck on the straw or drink otherwise safely without choking.
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Kathryn F. Kennedy and
Lazar Kogan are now friends 3 years, 2 months ago
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Lazar Kogan replied to the topic Radicava? – – What advice, comments or tips do you have? in the forum Living With ALS 3 years, 3 months ago
Efficacy is the main reason.
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Lazar Kogan replied to the topic Radicava? – – What advice, comments or tips do you have? in the forum Living With ALS 3 years, 3 months ago
When I inquired about Radicava treatment for my wife who is a patient with a very respectable physician in an ALS clinic the response was that he would not suggest this treatment to any of his relatives should they be diagnosed with ALS. Enough said!
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Amanda and
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Lazar Kogan replied to the topic Are Your Friends Struggling with What to Say to You? in the forum Lazar Kogan 3 years, 5 months ago
I told our friends that as there was no shortage of topics to discuss when my wife was not a patient with ALS, there should no shortage now as well. My wife’s illness simply is not an added topic.
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Lazar Kogan posted a new activity comment 3 years, 5 months ago
Thanks, Dagmar.
As a new member I am not sure whether there have been recent forums or discussions on the topic of herbal supplements and remedies for pALS. I could not find them by searching the forum topics. If there have not been one, can we start such discussion. I have seen a lot of advertising for herbal remedies but have to question their…[Read more] -
Lazar Kogan became a registered member 3 years, 5 months ago
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Hello Lazar,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic.If you have any questions, concerns or even…[Read more]
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Thanks, Dagmar.
As a new member I am not sure whether there have been recent forums or discussions on the topic of herbal supplements and remedies for pALS. I could not find them by searching the forum topics. If there have not been one, can we start such discussion. I have seen a lot of advertising for herbal remedies but have to question their…[Read more]
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Hello Lazar, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]
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