[Gregory M Hickson]

Hi. My name is Gregory and I’m on R & R & N (Nudexta). First noticeable symptom, hoarseness, Feb 2019. All the usual test to figure out why I was hoarse. Figured it was ALS Oct 2019 when ENT showed me my tongue and vocal cords quivering. (they weren’t a month before) Finally got in to see Neurologist #1 Feb 2020 and had Neurologist #2 give EMG Mar 2020, probable ALS. Covid slowed everything down but got from Neurologist $3 diagnosis, bulbar onset, June 2020. Started all 3 ALS meds July 2020 and still on all 3 meds. Don’t know if they are working but I figure might as well give them a shot, after all what have I got to lose. Got Trilogy July 2020 and feeding tube Nov 2020. Can’t speak since Feb 2021, so I use verbally app. on I-pad. Use suction machine and cough assist regularly. Use atropine drops, glycopyrrolate and just started botox shots to combat Saliva issues. Hands are getting weaker, have an EyeOn computer that I practice on for now. Used a wheel chair at my doc appt last week for the first time ever. It served me well so time to get my own. My legs are good for now but my breathing slowing down, 48% last test. My spouse of 28 years is my Cals and he is my hero. Hello to all who read this and thanks for your postings, they help.