ALS News Today Forums | Ginny | Activity https://alsnewstoday.com/forums/members/gschmbrs/activity/ Activity feed for Ginny. Fri, 17 Apr 2026 13:37:06 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 a1407d5deb301ef898e01098e27eca3b Ginny replied to the discussion How old were you when you were first diagnosed? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/how-old-were-you-when-you-were-first-diagnosed/#post-26175 Thu, 26 Dec 2024 22:20:50 -0600 Reply to How old were you when you were first diagnosed?

I was 75 when symptoms started and that was slurring my words, at 76 I was finally diagnosed at the ASL clinic in Atlanta. I am now 77 and cannot speak, eat barely swallow. I have a feeding tube. I can no longer hold my head up straight, but I can walk and use my arms..

]]> 19c4574313876d11966ebfaf55ef3b60 Ginny replied to the discussion How do you deal with social gatherings? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/how-do-you-deal-with-social-gatherings/#post-26174 Thu, 26 Dec 2024 22:15:10 -0600 Reply to How do you deal with social gatherings?

I can no longer drive or even hold my head up straight, so I’m pretty much home bound.

]]> a7a5d91c6cc9a3b8c8eab6b0a95006c8 Ginny replied to the discussion How do you deal with social gatherings? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/how-do-you-deal-with-social-gatherings/#post-26173 Thu, 26 Dec 2024 22:13:18 -0600 Reply to How do you deal with social gatherings?

My sister visit when she can. She lives in Florida.

]]> 4a19d51e7175ff05b24ea9b42650f9c4 Ginny replied to the discussion ALS topics: What are you looking for? in the forum Using Our Forums https://alsnewstoday.com/forums/forums/topic/als-topics-what-are-you-looking-for/#post-26127 Sat, 30 Nov 2024 03:47:45 -0600 Reply to ALS topics: What are you looking for?

I have bulbar-onset and do not see much of this type of ALS. Does it progress to other parts of the body and how fast??

]]> 9a766eba6b943c9b964716afeeb8e743 Ginny replied to the discussion How do you fill your cup on difficult days? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/how-do-you-fill-your-cup-on-difficult-days/#post-26125 Fri, 29 Nov 2024 16:31:16 -0600 Reply to How do you fill your cup on difficult days?

I was also diagnosed with Bulbar- onset in March. I can no longer speak or eat. I’m living on boost.

]]> 0cd35e8165cdbb64611c98a4a0bbebd5 Ginny replied to the discussion How do you deal with social gatherings? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/how-do-you-deal-with-social-gatherings/#post-26124 Fri, 29 Nov 2024 03:11:25 -0600 Reply to How do you deal with social gatherings?

I don’t go…

]]> 63f279fd722b34bed601c9ff5c90f794 Ginny replied to the discussion What do newly diagnosed ALS patients want to know? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/what-do-newly-diagnosed-als-patients-want-to-know/#post-26123 Fri, 29 Nov 2024 02:58:27 -0600 Reply to What do newly diagnosed ALS patients want to know?

My question were, how did I get it, is there a cure.

]]> d2535e07a79463fa0e640046abd2342b Ginny posted a new activity comment https://alsnewstoday.com/forums/activity/p/22779/#acomment-24226 Fri, 29 Nov 2024 02:48:40 -0600 I was diagnosed with bulbar- onset ALS in March of 2024, after year long testing, because I was slurring my words. Since March, I have lost the capability to speak altoghter. I no longer can eat and I’m living on boost or ensure. Now I find in November, I’m having problems swallowing even the liquids. I don’t have any tremors and my legs are…

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In reply to - Ginny became a registered member ]]> b4b8e2c95701b7deac238543af77ad1f Ginny replied to the discussion What assistive device is helping you right now? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/what-assistive-device-is-helping-you-right-now/#post-25702 Mon, 08 Jul 2024 16:02:26 -0500 Reply to What assistive device is helping you right now?

I have a respiratory, suction machine and also cough assist machine

]]> fb2e2da2382cb36d1aa267262d48a756 Ginny became a registered member https://alsnewstoday.com/forums/activity/p/22779/ Fri, 03 May 2024 13:44:33 -0500 2