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How do you fill your cup on difficult days?
Living with ALS or caring for someone who does can be quite a challenge. How do you keep your cup full while juggling challenging symptoms, endless tests, and the drain of deciphering it all?
Share your strategies and stories with us!
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4 Replies
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As a pALS, I’ve learned that creating “quiet time” into or at the end of my busy/stressful days helps calm my body and mind. Sure, it would be easy to zone out scrolling through social media or watching a movie – – but quiet time – – noticing my surroundings, the colors, sounds… being present, is what helps me prepare for another day of “living with ALS.”
I look forward to reading what our forum members do. Please tell us 🙂
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I agree!
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Living with my diagnosis since March. Bulbar onset. Taking one day at a time and enjoying every minute with friends and family. I sometimes eat a cannibis gummy to help take the edge off and help to sleep.
The best medicine is stay active as much as possible and smell the coffee and take in all your thankful for.
Life is so prescious…..
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I was also diagnosed with Bulbar- onset in March. I can no longer speak or eat. I’m living on boost.
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