Forum Replies Created

  • Henry Feinberg

    Member
    July 20, 2023 at 2:29 pm in reply to: COVID-19 and correlation with ALS symptoms

    Hey Guys,

    This topic continues to come to the forefront. I am 80 years old and was diagnosed with ALS in December of 2022.

    I am convinced the Covid vaccine ( Moderna) has triggered my condition. While perhaps coincidental,  my symptoms developed shortly after my second shot and intensified after my first booster.

    This  is not intended to be a political statement but strictly my point of view.

    Respectfully,
    Henry

  • Henry Feinberg

    Member
    April 11, 2023 at 3:32 pm in reply to: ALS and Coronovirus

    Steve,

    Who do you think you are to criticize my views with such impunity? I stand by them 100% until it is proven that the Covid Vaccine is not responsible for causing MY ALS symptoms. To suspect that there is a political overtone to my message is absurd. My entire family (11) has had all their shots and boosters and no one has had an adverse reaction–but me. But all of our systems are different. I had to be raised on goats milk, otherwise I wouldn’t have survived my first year.

    I have recently turned 80, had a great life up until 18 months ago, so what will be –will be. I’m just trying to share my perspective and thoughts relative to my personal situation and the topic at hand.

    Henry

     

  • Henry Feinberg

    Member
    January 26, 2023 at 2:55 pm in reply to: ALS and Coronovirus

    Thank you for sharing your story.

    I am almost 80 and was  diagnosed with ALS. In December 2022. Until June 2021 I was walking 4 miles a day.

    Then shortly after receiving my second Covid  shot, I developed a limp. I attributed this to arthritis but subsequent cortisone shots while eliminating my discomfort, the limp stayed on.

    Then in late November 2021 I received my first booster and shortly thereafter my balance started to decline. While I could still walk a mile, I could no longer stand still in one place without shuffling my feet. I also lost some fine motor skills in my right hand.

    So —I have what I have – is it Covid vaccine related?—-nobody can tell me it’s a coincidence; not even the docs at OSU and the Cleveland Clinic. The Covid vaccine is responsible for triggering these symptoms.

    Henry

  • Henry Feinberg

    Member
    September 5, 2023 at 9:48 pm in reply to: Taking multiple ALS medications

    Dagmar,

    I’m curious as to how so many individuals can even afford to purchase the 3 R’s?
    From what I can determine,  a months supply of Relyvrio and Radicava can cost a combined $20k a month or more.

    Am I missing something ?

    Thanks,

    Henry