Recently I have been grieving because of all of the losses in functioning that happen with ALS. When there is no hope of getting better, that’s very difficult to deal with and accept. The reality of it is just shocking and overwhelming. I try to do things to take my mind off of it but those are temporary distractions. Staying strong is very challenging.
On a more positive note, I just got back from going to the beach with my mom for five nights. It was nice to get away from home for a few days and relax there. I hope everyone had a good summer and thank you all for your support and encouragement.