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Ann Thomson

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@jimann

Does anyone know if Theracurmin capsule can be opened up and sprinkled into feeding tube? View
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  • Profile picture of Ann Thomson

    Ann Thomson replied to the topic SUPPLEMENTS TO SLOW ALS PROGRESSION in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 6 months ago

    What are good brands for Tudca and other supplements?

  • Profile picture of Ann Thomson

    Ann Thomson started the topic Oral Hygiene in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 1 year, 7 months ago

    Does anyone have a suggestion on what to use instead of a regular toothbrush. My husband is having difficulty opening his mouth for brushing or rinse it. Are there any other ways to brush his teeth?

  • Profile picture of Ann Thomson

    Ann Thomson replied to the topic Flash Briefings in the forum Flash Briefings 1 year, 7 months ago

    I love listening to the flash briefings. I have a hard time stopping my day to read so the news flash briefings fit the bill. I have my AirPod in one ear all day so I am hands free .  I just wish there were more. I wish alsnewstoday was in audio too.

  • Profile picture of Ann Thomson

    Ann Thomson replied to the topic Virtual Meeting in the forum ALS Awareness and Advocacy 1 year, 7 months ago

    I would love it if you had a virtual meeting. I’m a cALS to my husband Jim who is completely nonverbal and can’t move.

  • Profile picture of Ann Thomson

    Ann Thomson posted an update 1 year, 10 months ago

    Does anyone know if Theracurmin capsule can be opened up and sprinkled into feeding tube?

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 1 year, 10 months ago

      I would think that it can, and wouldn’t affect its effectiveness. However, the curcumin powder might cause yellow staining on tubes and anything else it touches! I tried mixing the powder into my fruit smoothie… it stained everything from the spoon, glass, my teeth and even the placemat. (a few brushings with whitening toothpaste was needed).…[Read more]

  • Profile picture of Ann Thomson

    Ann Thomson started the topic Neck drop in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 1 year, 11 months ago

    Today my husband just started not being able to not being able to hold his head up. I was wondering if anyone had any suggestions what I can do to help him.

  • Profile picture of Ann Thomson

    Ann Thomson posted an update 1 year, 11 months ago

    @dagmar-munn Good Morning. I was wondering if you would tell me what brand of theracurmin you use? There’s so many different brands.

  • Profile picture of Ann Thomson

    Ann Thomson replied to the topic Online Support Groups in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 1 year, 11 months ago

    I feel so helpless. My husband is failing quickly. I might be grasping but was wondering if anyone takes curcurmin and is so what dosage and brand!!!Help
    ❤️

  • Profile picture of Ann Thomson

    Ann Thomson posted an update 2 years, 1 month ago

    Has anyone taken AMX0035. My husband is declining and I’m hoping I can get it for him. It is expensive but his life is worth it. I’m just leary

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    Ann Thomson posted a new activity comment 2 years, 2 months ago

    Thank you for your quick answer. I figured it was too good to be true that’s why I came to the forum for an answer.

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  • Profile picture of Ann Thomson

    Ann Thomson posted an update 2 years, 2 months ago

    Good morning! Hope everyone had a great holiday season in spite of COVID. I was wondering if anyone take Leapxx. My husband is losing so much mobility. I’m desperate to try anything.

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 2 years, 2 months ago

      Hi Ann, Thanks for your question about Leap2BeFit. It is a powder supplement that is added to juice or water and promoted as an energy-strength-memory-muscle- etc., etc. booster (originally marketed to athletes). It came to light in the ALS community about 2 years ago when Mark Manchester, an American ALS patient reported the powder took him from…[Read more]

      • Profile picture of Ann Thomson
        Ann Thomson replied 2 years, 2 months ago

        Thank you for your quick answer. I figured it was too good to be true that’s why I came to the forum for an answer.

  • Profile picture of Ann Thomson

    Ann Thomson replied to the topic Leg jerks in the forum Living With ALS 2 years, 2 months ago

    Thank you for your suggestions. I am going to give him Aleve PM tonight.

  • Profile picture of Ann Thomson

    Ann Thomson started the topic Leg jerks in the forum Living With ALS 2 years, 3 months ago

    My husband has been having horrible leg jerks,spasms or whatever you call them. He is taking Baclfen but it’s not helping. He hasn’t slept in 2 days. So, I was wondering if anyone has any suggestions on this. I feel so helpless and useless.
    Merry Christmas, Happy Holidays to everyone on this wonderful forum.

  • Profile picture of Ann Thomson

    Ann Thomson replied to the topic Covid on the Rise, again in the forum Coronavirus (COVID-19) and ALS 2 years, 4 months ago

    I am getting worried too. My husband has an ALS clinic appointment in 2 weeks and I am afraid it’s going to get canceled. He hasn’t seen the ALS team in person yet. I pray we make it there 🙏🙏🙏

  • Profile picture of Ann Thomson

    Ann Thomson replied to the topic Getting involved in clinical trials in the forum Living With ALS 2 years, 4 months ago

    How do you get involved in trials? We live so far from them. I want my husband on a trial but I don’t seem to get to the right people.

    Ann

  • Profile picture of Ann Thomson

    Ann Thomson replied to the topic Nurown in the forum Research Topics 2 years, 5 months ago

    Is it too late to apply for the 3rd trial?  How do you go about signing up ?

  • Profile picture of Ann Thomson

    Ann Thomson replied to the topic What is the hardest thing being a Caregiver? in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 2 years, 5 months ago

    The hardest thing for me is feeling so helpless watching my husband struggle to eat, to drink and to walk. Just as Amy said, my husband was the bill payer, the handyman, the person I always leaned on. Now he can’t do any of that and I know it’s very selfish for me to say but it’s all in my court now. I miss my beautiful husband. I am so thank…[Read more]

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    Ann Thomson changed their profile picture 2 years, 6 months ago

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    Amanda and Profile picture of Ann ThomsonAnn Thomson are now friends 2 years, 6 months ago

  • Profile picture of Ann Thomson

    Ann Thomson changed their profile picture 2 years, 6 months ago

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