I live near Pittsburgh and go to the Allegheny General Hospital
Als clinic. I have tried to get into trials for 2 years. In the beginning I was told I wasn’t sick enough then I found the Healy trials and signed up for them and COVID hit and all the trials were put on hold. No I am over 3 years since onset of symptoms and not eligible for them anymore. So for me trials would have to be made more inclusive.
Jim Olejar
I am Jim Olejar an als patient diagnosed 12/18 with symptoms starting around 3/18. My problems began with gamer toes and bilateral foot drop. I managed to continue working as an electrician 8/19. Since that date I progressed from ago then added a cane then a walker and now a wheelchair. I still try to enjoy life and my wife and I make a point to go out to lunch every day. It helps both our sanity. I enjoy finding Dr. Bedlack when he posts any new webcasts. Good Luke to all of you.
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