Forum Replies Created

  • Joseph Osowski

    Member
    February 1, 2023 at 1:38 pm in reply to: Relyvrio

    I am in my second starter week of Relyvrio at (1) packet per day.   Next week I will go to (2) packets per day.   No side effects to report; only has an initial bad taste.   I offset the taste with a little mouthwash just before and immediately after.

    My doctor at Columbia initially prescribed the compound of Sodium phenylbutyrate and Tudca (in capsule form) while waiting on FDA approval of Relyvrio.  No side effects to report; no taste issues with capsule form.

  • Joseph Osowski

    Member
    February 3, 2023 at 4:44 pm in reply to: Relyvrio

    Suzanne, My doctor at Columbia initially prescribed the compound of Sodium phenylbutyrate and Tudca (both in capsule form) while waiting on FDA approval of Relyvrio.  No side effects to report; no taste issues with capsule form.  Total cost was around $900 per month, which is way cheaper than Relyvrio direct.  I received it from a specialty pharmacy in NJ.  Maybe your neurologist can write you a prescription that way.  Tudca is a supplement available online.