• Katherine Hooks posted an update 1 year, 10 months ago

    I have a question. Have you heard anything about AMX-0035. It is in phase 2. It significantly slows progression of ALS. Take care

    • My neurologist told me about it, she had just been to an ALS conference and learned about the studies. I have been taking it for a few months. I also take the Basis ELYSIUM, curcumin and ReMag magnesium, Vitamin D3 (5000 I.U.) Vitamin C (I aim for 2000 mg) and an edible THC (5mg). I was dx 11/04/2015, with limb onset ALS, over the years I have tried various supplements and will continue to do so as long as my budget holds out and I feel there is some benefit. I chose not to do Riluzole or Radicava, IMO just not enough positive results and some very negative results. I hope this helps.

      • I choose not to take Riluzole or Radicava. Have you heard that Dr. Bedlack has reversed 43 ALS people

        • YES! In fact I attended the Healing ALS Conference in SLC Utah, last October and Dr. Bedlack was one of the speakers. Several of the speakers were reversals and shared a lot of what they were doing to reverse their ALS. If you are able to, I’d encourage you to attend the next conference, they have a website, HealingALS.org.

        • Actually, Dr Bedlack isn’t the one “reversing” ALS – – he is studying patients who, on their own have no more ALS symptoms. His research is in verifying they were indeed diagnosed correctly, then to find out what they all did exactly to no longer have ALS.

          • Actually none of them claim to no longer have ALS, as that would be a cure. They have managed to reverse many of their symptoms and to live relatively free of some of the debilitating ALS symptoms.

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