Forum Replies Created

  • Elaine Clark

    Member
    October 28, 2021 at 4:39 pm in reply to: Riluzole side effect

    Ive been on Riluzole for about a year and thankfully have had no side effects. Hope you feel better soon.

  • Elaine Clark

    Member
    September 14, 2021 at 2:36 pm in reply to: Emergency Notification Device

    The i phone has an emergency alert system that can be activated by only holding the side buttons. Not only will it summon 911 but will contact your emergency contacts.

  • Elaine Clark

    Member
    August 20, 2021 at 8:38 am in reply to: No longer eating by mouth

    I also had a feeding tube place 6 months ago.It is very difficult to watch everyone else eat and enjoy their meals, especially when the food is appetizing and I want some. At first I’d try a few bites just for the taste, but now I’m no longer interested in trying it all my feeding is via peg tube. The coughing and risk of aspiration is just not worth it to me. I have trouble drinking anything too. I manage to drink one cup of coffee a day ,though it takes me over an hour to drink it. I cannot speak either so it has really affected my social life.

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