@ljk010456yahoo-com
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Luke J Kelly replied to the topic Favorite methods for holding head up in the forum Living With ALS 1 month, 1 week ago
Hi Doug,
Looks like you got a great discussion going.
I should tell you, I am an accountant not an engineer but, Creighton’s brace looks like the real deal to me. The band that Lou replied with also looks interesting. It looks like a person should be able to sit in a regular chair with it on. Has anyone tried driving while wearing it?
I ha…[Read more]
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Luke J Kelly replied to the topic Favorite methods for holding head up in the forum Living With ALS 1 month, 1 week ago
Hi Doug,
I have the same challenges as you.
I’m not sure what you might have seen other people wearing but, I have made a couple of braces using One Way Velcro, PVC pipe and a belt. I start with a single piece of 1/2 inch PVC pipe cut to length to basically reach from the top of my head to just below my belt at my waist. My wife made me a …[Read more]
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Luke J Kelly became a registered member 1 month, 2 weeks ago
Hello Luke,
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]
Hi Luke,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]