Forum Replies Created

  • Mark B Nilsson

    Member
    January 10, 2023 at 2:53 pm in reply to: Relyvrio

    I started on the Relyvrio  Nov 10th and have been on the Radicava ORS since about June and the only problem I have is keeping them separate and a time to take both of them through my feeding tube. I’m trying to up my calories and my doctor gave me a Botox injection to cut down the mucus/saliva yesterday so that should help me to consume more calories every day.

  • Mark B Nilsson

    Member
    January 10, 2023 at 2:23 pm in reply to: Welcome to the Club

    I have the inherited ALS C9 gene and hoping they come out fast with the Crispr-Cas9 therapy. it might cure any gene caused disease. It would be nice to see it in action.

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