Forum Replies Created

  • Mel McBroome

    Member
    September 14, 2023 at 2:39 pm in reply to: Do you have a funny moment you want to share?

    When I was at Body Science in Miami there was 7 of us with ALS in 1 room with our spouses. We started telling jokes. I told everyone you know Florida is a Republican state. Everyone of course said yes. I then said you know I’m from Calif liberal state. So I said if I drive to Florida with Cali license plate I will put on my back windshield don’t flip me off I’m a Republican lol. Every one started laughing. lol

  • Mel McBroome

    Member
    September 7, 2023 at 2:08 pm in reply to: Trying a New Treatment that looks Promising!

    AKV9/NU-9 has been approved for ALS clinical trials. This is the most promising one I hope. Prayers!

  • Mel McBroome

    Member
    May 12, 2023 at 1:48 pm in reply to: BodyScience Miami – Treating the cause not the symptoms

    Amanda,

    That’s awesome your Doctor did bloodwork. Everyone that I met at Body Science said there Doctor just said you have ALS that’s it.

  • Mel McBroome

    Member
    May 12, 2023 at 12:17 pm in reply to: BodyScience Miami – Treating the cause not the symptoms

    Dagmar,

    When Neurologists tell you have ALS they just do a brain scan and that’s it. They do not do blood work to see the cause! They do not recommend anything. This is I myself and other people do research. I have ALS since year 2015 and I am still working and driving. My research has benefitted me.

  • Mel McBroome

    Member
    May 12, 2023 at 10:51 am in reply to: BodyScience Miami – Treating the cause not the symptoms

    I Just want to say is I urge everyone to get tested for Lyme disease and Mold if you have ALS? Of all the groups that I am in contact with everyone that got reversals had this in there system. I will keep you posted if mine gets reversed or not. Within a 6 months or a year I will share my results. I have both in my system. God bless.

  • Mel McBroome

    Member
    May 4, 2023 at 4:12 pm in reply to: BodyScience Miami – Treating the cause not the symptoms

    Hi,

    I just spent my third week there. I will be going back to get my SOT to get my DNA CHANGED. That helps block the Lyme disease in my system. I was in a group of 5. All of us have Lyme disease and a few other diseases in our system. People go there from all over the world. I just pray on my next visit I see improvements. I am still working, walking, driving, eating normal, ect.. But have muscle loss in hands and arms. That suck!!! I can’t surf anymore or hit IB Imperial Beach, Ca waves.

  • Hi,

    I am currently on CY-5032 clinical trial. I am on year 2 now. No side affects at all. It’s supposed to expand your life. I was diagnosed 2.7 years ago. I am also still working. I have muscle lost in arms and hands. But walk almost like normal. I also take around 10 supplements. Vitamins B, B12, C, D, E, Zink, Cal-Mas Plus, Cod oil, Diglot Forke and Dianna Protocol.

    I first noticed weakening when I went out to surf in my home town of IB Imperial Beach, CA and could not lift myself on my Surf Board. From then on I just Body board and didn’t thin nothing of it.. Then the same year I saw my cousin and she said I Look different am I okay. I just told her I am working out harder at 24 hr. fitness. Then the next year I thought I had carpal tunnel syndrome. After a year passed that’s when I decided to see my doctor and she recommended me to see a neurologist.

    Prayers!
    Mel McBroome