Michael
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Greetings,
I sit on the Commission for Accessibility in Ridgefield CT, and this is an issue that comes up often. The American with Disabilities Act is a complaint-based act, and it is up to us to voice our concerns regarding any establishment that does not meet the ADA codes. If you encounter an issue you can go onto the Department of Justice website and there is a citizen complaint form that you can fill out and submit. I know that is not a popular option but if no one raises their voice nothing will change. I recently filed a complaint with a local restaurant that had very poor parking for handicapped individuals. I had reached out to the owner on two separate occasions and received no response, so I filed a formal complaint and the DOJ responded in a timely fashion. We had a Zoom call, and they are investigating the issue. I have not heard back as of this date, but it has only been three weeks since we met. If you raise an issue with a local business and they say they are grandfathered in that is not true as there is no grandfather clause for the ADA. The Commission is responsible for section one and two which covers municipal buildings and town roads. Private businesses are covered by section three so in this instance I was acting as a private citizen. Use your voice when you can to correct an issue that not only you are affected by but everyone with a mobility issue.
Cheers, Michael Londrigan
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My wife and I are getting it as soon as it is offered!
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Hi Chuck,
Have you looked into the Healy Platform out of Boston. I am in a group and one of the participants was recently accepted into a trial with barely meeting 50% lung capacity. They are calling it the Healy Platform and are trialing multiple treatments at the same time.
I have participated in a trial with Hospital for Special Surgery it was an 18 month trial and I have completed that and went into the open label. The drug is called Arimoclomal and the company sponsor is Orphazyme. I have been on the open label since September. No changes from the trial so I am assuming I was getting the drug all along and not the placebo but will find out in the spring when they publish their findings.
Cheers Michael