@montanamarykate
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Mary Kate Smith replied to the topic What is, or has been the biggest adjustment for you in living with ALS? in the forum Living With ALS 3 weeks ago
My biggest adjustment has been to not being to talk or eat. I use my phone gorgeous speaking and have a feeding tube. I do miss drinking a big glass of water. Other than those 2 issues I am thankful that I can still do everything else. Completely take care of myself.
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Mary Kate Smith replied to the topic No longer eating by mouth in the forum Living With ALS 10 months, 1 week ago
I saw Jan’s post on excess saliva. I had the same thing. My doctor prescribed Glycopyrrolate for excess saliva and it works. Hope anyone having this issue will check it out.
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Mary Kate Smith replied to the topic No longer eating by mouth in the forum Living With ALS 10 months, 2 weeks ago
Hi Kathy, I’m on my 3rd year with Bulbar and I’ve had a feeding tube for about a year now. So glad I did as I was unable to eat and not getting enough calories or nutrition. I also have have lost my voice and use an app on my phone for communications. It’s hard to not eat when everything smells so good but I find it helps when I cook for o…[Read more]
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Mary Kate Smith became a registered member 2 years, 5 months ago
Mary Kate,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]
Hello Mary Kate, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let u…[Read more]