ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Curtis Mumpower

Home Members Curtis Mumpower
show less show more
Profile picture of Curtis Mumpower

@mumps129

  • Activity
  • Profile
  • Friends 2
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Curtis Mumpower

    Curtis Mumpower replied to the topic What are your opinions and thoughts on volunteering for ALS clinical trials in the forum Research Topics 1 year ago

    I began the Healy Drug trial in 11/2020 & was randomized to Zilucoplan. My reason for signing up was probably the same as most.  The chances for receiving the actual drug were much better than other studies and even if I didn’t receive the drug, hopefully my participation would help someone else down the road. I also agreed to do the 2 lumbar pu…[Read more]

    • Profile picture of Amanda
      Amanda replied 1 year ago

      Curtis, that sounds great. There are several people in this online community that are also participating in the HEALY program. It will be interesting to see what there experiences are like. Please continue to keep us posted on how you are doing and what you think about the treatments.

  • Profile picture of Curtis Mumpower

    Curtis Mumpower replied to the topic Getting involved in clinical trials in the forum Living With ALS 1 year, 6 months ago

    As a follow up, I’m also working with another research group,  ALS TDI (Therapy Developement Institute) in Cambridge Mass. doing voice & motion tracking thru their Precision Medicine Program(PMP). They are a doing a great amount of drug research and have recently brought a drug(AT-1501) they developed into the trial phase.(Phase 2). You may be ab…[Read more]

  • Profile picture of Curtis Mumpower

    Curtis Mumpower replied to the topic Getting involved in clinical trials in the forum Living With ALS 1 year, 6 months ago

    Hi Carolyn! As I recall, it was about 2 weeks before I found out I was approved. A big reason I was recommended for the trial as I said was that my respitory and swallowing are still very good and I am less than 36 months from diagnosis. The other 2 drugs, which names I can’t recall at the moment, are taken orally. One being a pill, the other a l…[Read more]

  • Profile picture of Curtis Mumpower

    Curtis Mumpower replied to the topic Getting involved in clinical trials in the forum Living With ALS 1 year, 6 months ago

    My ALS Dr at the University of Iowa Hospitals & Clinics in Iowa City Ia suggested that I would be a good candidate for the Healy Trials as my respitory & swallowing are still very good.  Had to go thru a qualifying process(blood work, respitory testing, urinalysis & strength testing). They also sent me a full overview of info on the trials with…[Read more]

  • Profile picture of Curtis Mumpower

    Curtis Mumpower replied to the topic Does ALS slow you down? in the forum Living With ALS 1 year, 11 months ago

    Hi Dagmar! Yes. ALS does/has slowed me down. Especially in the last couple of months. Was diagnosed 11/2019. My decline has been relatively slow so far with most of my weakness in my hands until recently. I’m noticing that my legs are becoming weaker but my brain tells me to keep on keeping on, which I do but it wears me out pretty s…[Read more]

  • Profile picture of Amanda

    Amanda and Profile picture of Curtis MumpowerCurtis Mumpower are now friends 2 years ago

  • Profile picture of Kathryn F. Kennedy

    Kathryn F. Kennedy and Profile picture of Curtis MumpowerCurtis Mumpower are now friends 2 years, 2 months ago

  • Profile picture of Curtis Mumpower

    Curtis Mumpower changed their profile picture 2 years, 2 months ago

  • Profile picture of Curtis Mumpower

    Curtis Mumpower replied to the topic Do you experience muscle twitching? in the forum Living With ALS 2 years, 2 months ago

    I began having twitching in my right bicep 4 maybe 5 years ago. Lightly at first then more prominent over a few months. Then spread to my left arm and then my legs. Noticed in2/19 that I was losing strength in my right hand and also began noticing muscle atrophy in my right hand at that time as well. By 9/19 was noticing significant loss of…[Read more]

  • Profile picture of Curtis Mumpower

    Curtis Mumpower became a registered member 2 years, 4 months ago

    • Profile picture of Amanda
      Amanda replied 2 years, 4 months ago

      Hello Curtis, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 2 years, 4 months ago

      Hello Curtis,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]

Profile Photo Mike Kilmade Profile Photo meganharley

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Recent Replies

  • I wrote a song for ALS Awareness Month
  • I wrote a song for ALS Awareness Month
  • I wrote a song for ALS Awareness Month
  • What do you think of this new form of Radicava?
  • I wrote a song for ALS Awareness Month

Members

Newest | Active | Popular
  • Profile picture of Bill
    Bill
    Active 15 minutes ago
  • Profile picture of Erick Scroggins
    Erick Scroggins
    Active 27 minutes ago
  • Profile picture of John McCormack
    John McCormack
    Active 28 minutes ago
  • Profile picture of KarenM
    KarenM
    Active 32 minutes ago
  • Profile picture of Kathy stitz
    Kathy stitz
    Active 32 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Recent Posts

  • Getting Dental Work With ALS Is Often Complicated and Stressful
  • Clinical Trials in Pediatric ALS ‘Simply Not Feasible,’ Scientists Argue
  • Don’t Let Awareness Get Lost on the Already Aware

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]ews.com
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account